Thanks Annie...I definitely am getting copies.

I got a call from my primary care physician's office who referred me to a pain specialist after hearing the story. The specialist is waiting for the referral from the office and then will call me to schedule an appt.

Last night, I FINALLY got a call from a receptionist at my neuro's office that said, "The doctor said that since your issue does not directly relate to Myasthenia Gravis, you need to consult with your primary care doctor regarding this matter." I was so stunned. It was so cold and out of character. I mean my last note to him said my primary doc asked me to call you to discuss this matter. I didn't know what to say. I mean, what the heck was that about? This is a doc who had been running allergy tests for me!!

I can't wrap my brain around my doc saying this all doesn't concern him. Is that true? I mean, I couldn't walk on and off for most of the week and was choking with a hoarse and weak voice and had major breathing issues. So I am confused. The cause could be systemic stress from withdrawl of tramadol exacerbating MG sx. And if that is true, then I suppose it's not his problem?

But as you were saying Annie, if I had too much mestinon and that is what might have been causing the breathing to become worse each day----or the w/drawl of tramadol caused a flood of acetylcholine----doesn't that concern my neuro?


How can we know for sure?

debra