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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | ||
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Senior Member
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I'm just passing this on in case anyone else out there is as slow on the uptake as I am. I have been wondering for a year why I'm always so tilty on my way out of church on Sundays, even if I don't do any standing. It occurred to me today that it's because sitting up straight requires the use of my side and back muscles, which tires them out. At home, I never sit up straight for that long. I lean back on the couch, or an easy chair, or here at my desk, I slump way back.
Abby |
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#2 | ||
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Junior Member
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Right! Since I messed up my back with a compression fracture and got stinosis, I have attended only Sunday School (exploring modern theology) and have refused to sit thru church. Right now getting to SS at 9 am does not allow me enough time to get read,y, allowing for mg, after taking the service dog to relieve himself. It takes a funeral or wedding to get me into the church. I live in my recliner at home (with the dog lying on the footrest).
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#3 | ||
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Member
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Oh yes this is something I just started to compensate for. Didnt think aobut the logic, the necessity. I am so grateful for my couch I just bought by chance before I got worse. The back of it goes clear up like a recliner. Sometimes I put pillows at my sides to help support me on worse days. Just my arms hanging at times causes pain if I have strained an upper body location so the pillow supports my arms at a hihger level. I could tell the one nurse at the hosp who I told I needed a bed not a chair the second time for IV fluids didnt think it was a big deal. She hedged and said if they had one. I nicely said I know I am only 59 but my body is like I am 90.
I dont think it has anything to do with 'being slow' to get it. I just see at times when stuff like this sinks in or someone points it out like here how there is another place I have just started to accomodate with out really thinking why. Annie59 |
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#4 | ||
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Junior Member
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Quote:
I am still amazed 'sitting' can make me so tired! Weak. I realized a while ago, sitting in an electric cart at the store, in my electric chair, in a moving car really tires out and makes my torso weak. I notice it also makes my breathing harder. |
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#5 | |||
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Member
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Sitting up for very long is a tough thing to do.
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#6 | ||
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Junior Member
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I agree, I can do more work while sitting at home in my recliner than when sitting up at work. Sitting in the MD office is even worse. . .must be stress on top of sitting up.
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