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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | ||
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Junior Member
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I have it down pat when it comes to bedtime meds. But I am struggling to remember to take mestinon 4 times a day with food. I had a most dramatic display of the importance of keeping my 30 mg doses on schedule today. Forgot to get the 2nd dose when I had lumch. Earlier I had walked the service dog fairly easily and was driving ok too. But when I tried to repeat those activities a while before supper, I had blurry vision and diplopia at near distances, plus I was getting wobbly knees also. Not until I reached for the supper dose did I see I had skipped the lunch dose. The last bout when all my mg symptoms got worse and I had extreme digestive problems has only been over a few days. I have been much better with vision and walking since I began to stick to the med schedule religiously. So I ordered a 'talking pill box with alarm'--a one-day, 4 dose type. I will transfer the day's pills every morning from the weekly pill keeper which I overlook so easily. Now, unless I have a death wish I don't know about, perhaps I can keep the meds on schedule. It is obviously extremely important for me.
Harriet |
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"Thanks for this!" says: | pingpongman (03-13-2011) |
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#2 | ||
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Junior Member
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I am so glad you have gotten one of those alarm pill boxes! They really do help alot. I also have a few of whatever I am taking on me, purse, wallet, just incase I am not home and realize I need to take it. Never know.
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"Thanks for this!" says: | KathyV (03-13-2011) |
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#3 | |||
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Member
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My trick is that I schedule alarms in my cell phone and have it remind me to take my mestinon. It definitely helps!
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#4 | ||
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Junior Member
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Any one try to take an akarn pill box or an 'active' cell phone on a plane?
Noticed ET location on last entry. i am just over the mts--did PR for U-T way back when. (Daily hear radio ad for inn that says it is in the Tenn. Smoky mts; in my day it would have been ET Smoky mts.) Have they given up on 'the 3 states of Tennessee?--where my folks moved along side the French Broad in 1791.) |
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#5 | ||
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In Remembrance
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Truman, I have a pill box that you speak of. It is to big for me to tout around, so I have a watch that has 5 diff alarms I can set on it. I wear a watch all the time. Another option that I used when I first started was a pill beeper. That worked well too. Guys are lucky there are tons of nice looking watches with alarms on em. Gals, we are not so lucky. There are a few. The one I wear that is cute is called Casio G series. But there are only a few out there that I'd wear. Giggle.
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#6 | ||
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Junior Member
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My pill box will stay home, except for going with me when I travel. Not sure I could set a watch or alarms on a cell phone anymore; hoping the device on the box is big enough for me to see (have a peculiar occular myasthenia that works like presbyopia--double vision, etc. up close, not at a distance).. Thanks!
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#7 | ||
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Junior Member
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Thanks, I have the same problems, if I miss a dose I am down for the count. I'm going to try the cell phone alarm. I always thought Mestinon could be used hit or miss to give you a boost, but now, I know it has to build up in your system and if you miss a few doses. ugh.
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