[Stellatum]

I'm really disappointed. All my symptoms are back. It took a week and a half for the IVIG to make me strong, and then I got two weeks of health. Now I'm back to where I was before I got bad enough to need IVIG.

Did I "overdo" it while I was strong? You bet I did! And I'm not sorry. I made up for lost time. I did a huge spring cleaning on the house, taking care of all the messes that had piled up over the months I was sick.

Two weeks of surprising strength was enough to convince me that the IVIG helped, which is good for my peace of mind--it's confirmation that I have an autoimmune disease and that Imuran is a reasonable treatment. But, oh, I was really hoping for at least a month. And now I have to get used to being sick all over again.

While I was healthy, I was able to start seeing a psychologist for help dealing with this. I'm grateful for that. Now I'm in the swing of it, I should be able to keep it up--it's just the starting up that's daunting and required energy. She is helpful to me. I am going to ask her to help me figure out how to deal with periods of low energy where I just don't feel like doing anything, even things that don't require muscle strength--it's those periods that really get me down.

Abby