Im not sure how to go about asking my doctor when she says I still need to try one more med.

Im on monthly IVIG- which is whats keeping me strong. She says the Imuran lab reports are showing consistancy (increasing). Right now they are at 96- were 86 when i started, and *need* to be 100 before it works.

I told her if when they get to 100 it doesnt work without IVIG, im done with it and want to get the stem cell treatment reboot done. When I said this last all she said was- we need to try one more medication then we can look into that.


I just want the reboot done now...I dont understand. Ive applied to a trial in Chicago- they said they would have to bend the FDA rules for me to get accepted because of my - antibody test.

The people at johns hopkins should do this for me, as I am their patient and have tried all other options. Even with the IVIG my eye is still droopy and right arm/hand gets weak when typing.

Thanks for lettin me vent!