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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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Grand Magnate
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I'm confused. Your husband only has ocular MG and they are throwing that many drugs at him? How old is he?
Is his liver in bad shape? The liver is the "clearing house" of all things you put in the body. Yes, the kidneys help too but if his liver is bad, why all of the drugs? And did they test him for the TPMT enzyme BEFORE they gave him Imuran/Azathioprine? Maybe that's why he couldn't tolerate the Imuran. http://www.labtestsonline.org/unders...tpmt/test.html Do you have copies of the blood tests they've done? For example, if a person's B12 is 400 and they're having symptoms of a neuropathy, chances are they need B12 (sublingual). Has he had breathing tests to make sure his MG is not generalized? Not very many people have only ocular MG. Sorry if I'm putting out too much info but I'm wondering if they are doing too much for your husband. It doesn't quite make sense, given what you've said. The drugs he is on can come with some significant side effects and can even cause things like Pred induced diabetes. I hope his doctors can figure out what is best for him. Annie |
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