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Old 06-18-2011, 02:12 PM #1
camsgrams camsgrams is offline
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Join Date: Mar 2011
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10 yr Member
camsgrams camsgrams is offline
Junior Member
 
Join Date: Mar 2011
Posts: 15
10 yr Member
Default grateful for all the input

I am so grateful for all the input on this site. We have a wonderful Neuro well worth the travel we have to do but my husband not getting much relief of symptoms with his mestinon, 15mg prednisone and 3000mg cellcept ...because of hearing from people on the site we were armed with info when we saw him last...as it turned out didn't need to be...when he walked in his immediate comment was that he could see we needed to get more aggressive with treatment...so he bumped him up to 60mg prednisone for 2 weeks then will try slowly backing off....Also because of this site i know that some people see an improvement after 4 days....the drs can give you this info BUT it is good to hear it from people who are dealing with it directly.
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