Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.

View Poll Results: Is there anyone out there that is antibody neg. including Musk for Myasthenia Gravis?
Yes 3 30.00%
Yes
3 30.00%
Yes, its possible 2 20.00%
Yes, its possible
2 20.00%
Yes and I would be willing to contact you. 2 20.00%
Yes and I would be willing to contact you.
2 20.00%
No 3 30.00%
No
3 30.00%
I probably don't have it even though I am being treated as if. 0 0%
I probably don't have it even though I am being treated as if.
0 0%
Multiple Choice Poll. Voters: 10. You may not vote on this poll

 
 
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Old 06-21-2011, 09:44 PM #1
blondieslp blondieslp is offline
Junior Member
 
Join Date: Apr 2011
Posts: 19
10 yr Member
blondieslp blondieslp is offline
Junior Member
 
Join Date: Apr 2011
Posts: 19
10 yr Member
Default New to all this!

I have been treated in the last few months as though I have myasthenia gravis but do not have the antibodies to it. I am on mestinon and more recently prednisone. I was really beginning to think there is a light at the end of the tunnel but now my neuro is cutting me back on the prednisone I think to get me to an every other day dosage. But I am beginning to feel like crap again. My emotions are beginning to get a little out of hand and the weakness I feel in my chest is getting worse. I have had most of my symptoms in my eye, really bad throat issues ( hoarseness, can't sing well and at times my voice is very weak), neck and chest area. Is there anyone with similar issues that would be willing to share with me their experience and what the future holds? Any help would be greatly appreciated. I also cannot handle the hot humid weather. It makes me very ill and I just can't seem to function. Is there anyone out there that is AChR negative? I don't even show with Musk. Please help?
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