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Old 06-23-2011, 02:20 PM #11
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Talked to my wife and I was charged $5,000 per bag (IVIG) by the infusion center. It usually takes 5 bags per course ($25,000). It is just a matter of having IV inserted and waiting 2 1/2 hours for it to drip out. Some people have side effects but my treatments have all been unmedicated and I got a slight headache a couple of times. It was boring but not bad at all.
Mike
Mike- do you go thru a home infusion place? or hospital?

Like I said my bag is 6,000 maybe due to dosage. Mine drips out over 6 1/2 hours but it is because I get bad side affects of not. hope u doin well
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Old 06-23-2011, 03:56 PM #12
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I had IVIG about 6 months ago. The first day was given in ambulatory care center of a hospital and the remaining 4 days were at home, administered by a nurse. The first day of my treatment cost $8500, and the remaining 4 days at home cost about $8500 total. It definitely was a cost savings to do most of the treatment at home. If I need it another time, I'll either have it done at an infusion center or at home. Or I may request the subcutaneous form of gammaglobulin since the home care company said that I could be taught to give it myself.

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Old 06-23-2011, 08:05 PM #13
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Mike- do you go thru a home infusion place? or hospital?

Like I said my bag is 6,000 maybe due to dosage. Mine drips out over 6 1/2 hours but it is because I get bad side affects of not. hope u doin well
Mine is done by a hospital infusion center in Charlotte. I haven't had any side effects so they pump it in as fast as possible (2 1/2 hours) the amount is based on body weight. I now weigh 147 and getting smaller.

My neuro is trying to get me through this tough peroid until the Imuran kicks in. My last visit he was starting to doubt the Imuran because we are working on 8 months now.
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Old 06-23-2011, 08:55 PM #14
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Originally Posted by pingpongman View Post
Mine is done by a hospital infusion center in Charlotte. I haven't had any side effects so they pump it in as fast as possible (2 1/2 hours) the amount is based on body weight. I now weigh 147 and getting smaller.

My neuro is trying to get me through this tough peroid until the Imuran kicks in. My last visit he was starting to doubt the Imuran because we are working on 8 months now.
Mike
Yeah maybe thats why mine is my higher, i weigh 185 but mostly muscle...

but do you know what your MCV is? Its part of a CBC test used to evaluate the effectiveness of imuran.
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Old 06-23-2011, 10:25 PM #15
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The cost of the ivig is based on the size of the person and the dosage the doc orders. I was on .4 grams of ivig per kilogram of weight weekly and the cost was about $10,000/treatment. My ins negotiated a deal and actually paid $3,400 of the total cost per treatment. However, my doc changed my dosage to 1.0 grams per kilogram of weight biweekly about 2 months ago and I haven't seen the bill or payments for that yet. Obviously, it will be higher because the cost is almost all in the cost of the medication. Just think, it takes about 1,000 blood donations to manufacture 1 dose! Expensive!
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Old 06-23-2011, 11:36 PM #16
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Don't forget about Hizentra.

http://www.hizentra.com/

It's subcutaneous and you do it at home. A nurse trains you. I don't know what the cost comparison is.

Annie
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