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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | ||
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Junior Member
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I have just been started on Immuran 50mg 3 times daily. I was wondering what are others dosages or the usual dosages and if it is ever increased.
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#2 | ||
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Senior Member
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Quote:
I hope it works for you. I've been on it seven months and not had an improvement, but I can afford to give this a long trial, since I'm not that sick. Abby |
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#3 | |||
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Member
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I was up to 250mg a day. I took Imuran for 11 months and my neuro decided it wasn't working so I just switched to Cellcept. While on Imuran I lost 30-35 pounds due to nausea and loss of appitite. During this period I was also on Mestinon and IVIG treatments about every 2 months.
Mike |
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#4 | ||
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Junior Member
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I was started on 25mg of Imuran and increased to 50 mg/day after about a week. I was never able to have my dose increased above 50mg/day because my white count dropped too low. I think the original plan was to increase my dose to 75 mg 2x/day. Make sure your bloodwork is being done at least once a month in the beginning. I hope that you're able to tolerate the Imuran and that it works for you.
Cate |
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"Thanks for this!" says: | tysondouglass (11-11-2011) |
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#5 | |||
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Member
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I started on 200mg a day and now am at 275 a day. I've never heard of using imuran as a 2 times a day drug...may want to question your doc about this. Getting blood work done for it is different when doing so, it may require a peak and trough level, after and before.
I am weaning off imuran to see if it is helping as I also take tacrolimus and prednisone. |
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#6 | |||
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Member
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When I was taking Imuran it was twice a day. 100mg in the morning and 150 mg in the evening. I'm pretty sure the only thing it did for me was cause my weight loss.
Mike |
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#7 | ||
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Junior Member
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75mg twice a day, along with as much mestion ( both timespan and 60mg) as needed. It took about 8 weeks to get past some of the strange side effects of Imuran, another 10/14 months for results. 2 years down the road I feel better, still have all symptoms. But.... To a lesser degree and spaced further apart. I can usually self regulate how well I feel and look with mestion. Laying flat while sleeping , and summertime are still problematic.
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#8 | ||
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Junior Member
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I would like to thank you for all the responses and appreciate you very much.
Sharon |
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