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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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11-18-2011, 12:02 PM | #1 | ||
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Junior Member
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This is a really strange phenomenon, and I'm not sure what to make of it, but the collective knowledge and expertise of the people on this forum is quite remarkable so I thought I'd see if any of you have any insights.
Whenever I have a really bad day, very weak most of the day, and feeling hungry at dinnertime: every time we go out for pizza and wings when I'm like this, my symptoms go away after eating buffalo wings with ranch dip and diet coke. (Before the pizza arrives.) I'm going to try to link to a video of the dramatic improvement: http://www.youtube.com/watch?v=L0pGkwL0miA I can't figure out what is giving the benefit. Other salty foods, fatty foods, spicy foods, vinegary foods, don't do it. Chicken for dinner at home doesn't do it. Diet coke or ranch dressing independent of the wings don't do it. The only other thing that has had this kind of consistent effect was crab puffs with some kind of soy-based dipping sauce from PickUp Stix. It didn't work if I didn't use the dipping sauce, but soy sauce by itself doesn't do the trick. Any thoughts? (Other than, "Geode is a nutcase!" or "now I understand why she's so big!" LOL) Thanks, Tatia |
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11-18-2011, 12:49 PM | #2 | ||
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Senior Member
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Wow, that is really interesting. For what it's worth, I don't think you're nuts at all. I love the way you have documented this. You seem like a person I would like to know.
I see from your previous posts that you know about hypo- and hyperkalemic periodic paralysis. Even those, though, are made worse by high-carb, greasy meals, and not better. Only one thought here: you say eating these foods, and other salty foods, at home doesn't have the same effect. I think that restaurant foods are WAY saltier than anything you'd make at home even if you were trying to cook with a lot of salt. Greasier, too. They say that we couldn't cook that "unhealthy" if we tried. I wish you the best of luck in figuring this out. What an incredible mystery. Please let us know if you get any new clues! Abby |
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"Thanks for this!" says: | Geode (11-22-2011) |
11-18-2011, 01:17 PM | #3 | |||
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Wisest Elder Ever
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Monosodium glutamate?
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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11-18-2011, 01:53 PM | #4 | ||
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Senior Member
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Ooh, that's a good thought, the MSG! You can actually buy it at a large grocery store, for home experimenting.
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11-18-2011, 01:56 PM | #5 | |||
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Wisest Elder Ever
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Yes, it is called Accent.
We avoid this like the plague on PN board. I'll look around and see what it does if anything for MG. This article says MG has low glutamic acid ! http://www.ehow.com/about_5885736_te...amic-acid.html MSG is really difficult...so I would be careful with it. Here is a website with glutamic acid listed contents of some foods, including fast foods: http://nutritiondata.self.com/foods-...000000000.html Consuming glutamic acid may be safer than MSG... but I would think MSG would be in all fast foods to some extent.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Last edited by mrsD; 11-18-2011 at 02:20 PM. |
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"Thanks for this!" says: | Geode (11-22-2011) |
11-18-2011, 03:53 PM | #6 | |||
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Member
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Tatia, you are not a "psych" case -- LOL!!
Here is a link to a thread by Annie that might explain what is going on: http://neurotalk.psychcentral.com/thread80534.html In case you don't want to OR can't look at this thread, caffeine (Diet Coke) and nightshades act like Mestinon (peppers are in the nightshade family -- cayenne pepper is an ingredient of Buffalo Wings). So, you are, in effect, medicating with food.
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"Thanks for this!" says: | Geode (11-22-2011) |
11-18-2011, 07:32 PM | #7 | ||
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Junior Member
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Get an ingredient list from both foods (beg and insist if need be) and first see if there are common ingredients (like all the spices on the chicken and whatever is in the dipping sauce). Try everything in common serially. If there is nothing in common, try everything on both lists to see if you can find two substances which work. (If it's MSG, that would be nice, but if it isn't, go through everything.)
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"Thanks for this!" says: | Geode (11-22-2011) |
11-19-2011, 05:16 AM | #8 | |||
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Quote:
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"Thanks for this!" says: | Geode (11-22-2011) |
11-19-2011, 12:11 PM | #9 | ||
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Senior Member
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Here's a list of foods highest in glutamic acid (per 200 calories):
http://nutritiondata.self.com/foods-...000000000.html Abby |
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