Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


advertisement
Reply
 
Thread Tools Display Modes
Old 11-27-2011, 11:54 AM #11
alice md's Avatar
alice md alice md is offline
Member
 
Join Date: Sep 2009
Posts: 884
10 yr Member
alice md alice md is offline
Member
alice md's Avatar
 
Join Date: Sep 2009
Posts: 884
10 yr Member
Default

Quote:
Originally Posted by GrannyJo4 View Post
Thank you alice md for your words of wisdom. What you are saying makes sense to me. I'll keep you posted with the 2nd opinion on Dec. 22 with the neuromuscular specialist.
Is Movement Disorder a different disease than the M.G. or M.S.? or maybe because of one of them?
In a way MG is a movement disorder, because there is discordance between the movement you want to make and what you actually get. Although, it is not technically considered one. M.S. can cause different symptoms depending on the area of the brain which is involved.
What I meant to say is that you need a broad-based and open-minded neurologist, who will not try to automatically stick you into a box that he/she knows.
alice md is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
GrannyJo4 (11-27-2011)

advertisement
Old 12-03-2011, 02:33 PM #12
ginnie ginnie is offline
Elder
 
Join Date: Aug 2010
Location: Anna Maria Island Florida
Posts: 6,278
10 yr Member
ginnie ginnie is offline
Elder
 
Join Date: Aug 2010
Location: Anna Maria Island Florida
Posts: 6,278
10 yr Member
Default Hi Granny

I was just thinking about you Granny and hoping your swallowing issues are getting better. Let me know how you are doing. ginnie
ginnie is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
GrannyJo4 (12-03-2011)
Old 12-03-2011, 09:22 PM #13
GrannyJo4 GrannyJo4 is offline
Junior Member
 
Join Date: Aug 2011
Posts: 35
10 yr Member
GrannyJo4 GrannyJo4 is offline
Junior Member
 
Join Date: Aug 2011
Posts: 35
10 yr Member
Default

Thank you Ginnie,
I'm still not able to swallow. I try taking sips of water though out the day. Sometimes it works sometimes not.

After Church today my husband and I stopped at McDonalds. I wanted to see if I could take sips of a milk shake. I found out after the first sip that no I can not. I choked and got my self in another funk of a mood.

I don't know why I keep trying.
I have called to get a bariam swallow test done but the appointment won't be for 3 more weeks. I don't know if they can do much without me being able to swallow something besides a few sips of water when I can.
I am starting to see the thicker the liquid the hard for my throat has to push it down. It sits at the back of my throat and it's very scary.

I'm trying to get into a positive mood but it is so very hard.

I hope you and yours are doing well,
Sincerely, Josie
GrannyJo4 is offline   Reply With QuoteReply With Quote
Old 12-04-2011, 11:12 AM #14
ginnie ginnie is offline
Elder
 
Join Date: Aug 2010
Location: Anna Maria Island Florida
Posts: 6,278
10 yr Member
ginnie ginnie is offline
Elder
 
Join Date: Aug 2010
Location: Anna Maria Island Florida
Posts: 6,278
10 yr Member
Default Hi Grannyjo

I was kind of surprised that your doctors want you to do the barium swallow test. I had one, and it does require you to drink some thick fluid. If you can't swallow to begin with, I don't see how this test can be performed, as the liquid is tracked throughout your upper GI tract.
Have you had an endoscopy? It is where you are put to sleep for a real short time and they take a camera and have a good look at all parts of your throat and stomach. You also may get a biopsy. I am curious as that seems like a good investment in research into your swallowing problem. since you are asleep there is no resistance of your throat to the proceedure. I sure do hope things improve for you. What field of expertise is following your case? I will continue to keep you in my thoughts and prayers. ginnie
ginnie is offline   Reply With QuoteReply With Quote
Old 12-04-2011, 07:48 PM #15
GrannyJo4 GrannyJo4 is offline
Junior Member
 
Join Date: Aug 2011
Posts: 35
10 yr Member
GrannyJo4 GrannyJo4 is offline
Junior Member
 
Join Date: Aug 2011
Posts: 35
10 yr Member
Default

Quote:
Originally Posted by ginnie View Post
I was kind of surprised that your doctors want you to do the barium swallow test. I had one, and it does require you to drink some thick fluid. If you can't swallow to begin with, I don't see how this test can be performed, as the liquid is tracked throughout your upper GI tract.
Have you had an endoscopy? It is where you are put to sleep for a real short time and they take a camera and have a good look at all parts of your throat and stomach. You also may get a biopsy. I am curious as that seems like a good investment in research into your swallowing problem. since you are asleep there is no resistance of your throat to the proceedure. I sure do hope things improve for you. What field of expertise is following your case? I will continue to keep you in my thoughts and prayers. ginnie
Hi Ginnie,
The gastro doctor did a complete look using the endoscopy just before he put in the feeding tube. He went thought the mouth down the throat and into all the stomach, He wrote in his report everything looked healthy and normal.

The barium swallow test may or may not happen if I can't swallow the barium. I just have to wait and see what changes may occur in the next three weeks if any.

Thank you for your thoughts and prayers.
Sincerely, Josie
GrannyJo4 is offline   Reply With QuoteReply With Quote
Old 12-05-2011, 12:37 PM #16
ginnie ginnie is offline
Elder
 
Join Date: Aug 2010
Location: Anna Maria Island Florida
Posts: 6,278
10 yr Member
ginnie ginnie is offline
Elder
 
Join Date: Aug 2010
Location: Anna Maria Island Florida
Posts: 6,278
10 yr Member
Default Hi Josie

I sure hope they can find a resolution for you. I will continue to keep you in my thoughts and prayers. I am glad you had the endoscopy done, that is what showed me where my swallowing problems are. I had hoped that your situation would be helped quickly so that you can enjoy eating and swallowing once again. Do be good to yourself as you go through whatever proceedures they have for you. I hope you will be able to accomplish the barium swallow test. May you have peace during the holidays. ginnie
ginnie is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Things just keep getting worse stressedout Reflex Sympathetic Dystrophy (RSD and CRPS) 11 07-04-2010 08:42 AM
PT Making Things Worse? ali12 Reflex Sympathetic Dystrophy (RSD and CRPS) 14 01-01-2009 08:00 PM
Did Thymectomy Ever Make Things Worse? rezmommy Myasthenia Gravis 5 12-09-2008 02:11 PM
Can things get any worse??? lostmary Reflex Sympathetic Dystrophy (RSD and CRPS) 7 11-22-2008 08:52 PM
Things just keep getting worse for me.......... Roxie2007 Peripheral Neuropathy 21 02-12-2008 07:46 PM


All times are GMT -5. The time now is 03:02 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.