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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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Junior Member
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Hi J,
Yes, I also have M.S. and M.G., the only meds I'm taking for it right now is monthly I.V.I.G. and B-12 shots every 2 weeks. That has kept me on my feet for at least 7 years. My main trouble is with my swallowing. I started to go down hill in April and even though the doctors gave me 2 rescure amounts of the I.V.I.G. I just kept feeling weeker including my swallowing. As of August 8th I've been living on a feeding tube. The doctor said it most likely will be temporary but I am still not able to swallow anything by mouth including my saliva. It's a hard time for me and my family . The doctor is sending me for a 2nd opinion to see what exactly is causing the swallowing problem. I also called today to make a appoitment with a ENT doctor to see what he thinks. They don't think its the M.S. causing the problem because my MRI hasent changed in a couple of years. I'm not on Tysabri or Mestinon. Mestinon did not agree with me, it did more harm than good, but I know it has helped alot of peaple with M.G. My Neuro, hasen't put me on Tysabri because I was doing very well with the I.V.I.G. which helps both M.S and M.G. Something I heard once that has helped me, Rest when you can, Work when you can, and play when you can ![]() |
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