My most recent neuro, the 10th one I've seen, couldn't find anything with blood work or EMG, so he sent me to endocrinology. (Been to one already, we're going in circles.)

First visit, after reviewing several pages of normal test results from prior endocrinologist, as I sit in her office unable to open my eyes and having trouble holding my head up- Her: Did the neurologist check you for MG? Me: My labs and EMG's were normal. Her: Why can't they just give you the medicine trial to see if it works?

Second visit, after more normal testing. Her: I think you could have non-specific antibodies causing problems. Why can't they see if Prednisone will help? Me: Several years ago I had prednisone for a very bad chest cold, and then had several weeks of "remission," but later when I told my doctors this they don't want to try it. Her: Ask your neurologist, but don't tell him I said so. They hate that.

She ordered an ACTH stimulation test (I had a normal one 6 or 8 years ago) and said if it was abnormal she could give me Prednisone herself.

She is so wonderful and understanding and willing to think outside the box, but won't treat me for something that's not endocrine-related. How do I find a neurologist who will be open like this? Is it a neurology thing to be so black-and-white? Is it a male thing - do I need to find a female neurologist? I might not have MG, but why won't they at least try some therapies before saying, "Gee, I don't know, and I'm done with you. Learn to live with it"