Originally Posted by bny806

Thanks so much yall, for your replies!! Photobug: After the first loading dose (3 days in my case), i got pretty bad aseptic meningitis (confirmed by LP, I had been admitted into the hospital before it all).. Anyhow, after that loading dose, I thought I might feel better, but then just chalked it up to it must be placebo effect.. as I didn't want to get my hopes up.. that's how my symptoms remained for the next 3.5 weeks, then I got my second round of IVIG and felt crumby, and then on the 4th morning woke up - grabbed my phone, and couldn't believe it!!! I could grab my phone without jelly fingers.. each thing I did - get out of bed and walk, grab toilet paper, get up from sitting pick up my kids, holding silverware etc.. was all like a new amazing experience.. I then realized just how bad off I had been for so long..
So, sometimes it takes a few rounds before you get the full effect.. Wishing you the best of luck!
THank you all for your replies!! I Hope yall are doing well! I'm not around here often anymore, as I am thankfully back at work, taking care of my little ones etc.. I get IVIG every two weeks, and it holds me pretty steady.. though not where I would want to be, it's acceptable for sure.. we probably need to add an immunosuppresant, but I"m worried about it with my job, plus two little germy toddlers!