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Old 09-24-2012, 12:46 PM #11
Musicianate Musicianate is offline
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Join Date: Sep 2012
Posts: 1
10 yr Member
Musicianate Musicianate is offline
New Member
 
Join Date: Sep 2012
Posts: 1
10 yr Member
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I am a 23 year old male and I have mg. I've noticed symptoms for about two years now with some double vision and fatigue but it never was dabilitating. Doctors always just said I was too tired or stressed. Then one day a couple months ago it just blew up, started having double vision almost all day every day, started having real bad problems breathing, then my eyelids started drooping and getting locked up, speech got all wacky, started wobbling, couldn't stand for too long, eye pain, extreme fatigue, the whole nine yards. Lost my job because of it. I went to an opthomologist who passed me to a neuro opthomologist and when he looked over my MRI and ct scan said son I think you have mg, and he got me in with a neurologist the next morning, saying we have no time to lose. The next day even the neurologist was a lil iffy, 23 year old male going from working 70 hours a week on a horse ranch to not being able to hold his head up or even look at me is weird. After looking at all my tests and seeing I was perfectly healthy on the inside but I couldn't hold my arms out he started me on mestinon. I'm currently on 60mg every 6 hours which I feel like is the right amount for me, and when I have good days I'll even sometimes forget I have this disease, until I swallow back a bunch of water in my lungs or my knees start going out hahahaha. But I've also been on an all organic diet straight down to baking soda for shampoo and I think its helping. You just have to relize that some peoe are going to except there is something wrong with you, and others still won't believe you even on your weakest of hours, they just think man up your just tired.
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