NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Myasthenia Gravis (https://www.neurotalk.org/myasthenia-gravis/)
-   -   Trouble sleeping (https://www.neurotalk.org/myasthenia-gravis/173604-trouble-sleeping.html)

MrsVgz 07-22-2012 04:00 PM

Rainbow...that is an excellent suggestion. Thank you :)

southblues 07-22-2012 06:35 PM

I got on Ambien, and it made me go totally insane. Whacko. I would totally forget stuff from one second to the other. If I can't sleep, I just lay there. I read on my Kindle and it helps just so the book isn't too interesting.

I like pot, but I am terrified of the legal problems. If I get a drug arrest, I will lose my job, my insurance, and life will not be worth living. If it becomes legal, I will certainly try it for the MG. It is not worth the risk since it is illegal. I wouldn't even have to be convicted to get fired. And I will never find a job as easy as this one.

MrsVgz 07-22-2012 09:12 PM

Wondering, can pot be any worse than the rest of the meds I'm been on for the past ten years?? Lol

southblues 07-22-2012 11:13 PM

Sleeping pills, benzodiazepams, narcotic pain killers, tobacco, and alcohol are all legal. Does that make them safer than pot? I seriously doubt it.

BackwardPawn 07-22-2012 11:55 PM

I find I have trouble shutting my eyes completely. Also, prednisone keeps you awake (and I took 20mg accidentally tonight as it looks exactly like my new medicine, hence why I'm still up). I used to use a light mask to help sleep. My new medicine regime is putting me into deep sleeps, though. Its also making the MG worse, though, as they've found I have one disease that makes muscles weak and another that makes them tight.

BackwardPawn 07-23-2012 12:04 AM

Quote:

Originally Posted by southblues (Post 899793)
Sleeping pills, benzodiazepams, narcotic pain killers, tobacco, and alcohol are all legal. Does that make them safer than pot? I seriously doubt it.

Instead of spending billions fighting the stuff, they should regulate and tax it. When I was growing up, I had a pediatrician who told me that if I ever started smoking something, to choose pot as cigarettes would kill me.

(Just to be clear, I don't use pot for my MG or SPS as I could lose my job over it and get randomly tested now and then).

scrubbs 07-23-2012 10:27 AM

Maybe others that are pretreated with Benadryl prior to having IG infusions have the same experience as I. I sleep most of the time. Antihistamines make you sleepy.

I have trouble sleeping and maybe 1 or 2 times a week when I want to get a good nights sleep I take 1 and sometimes 2 Benadryl.

Tony

southblues 07-23-2012 12:05 PM

But Benadryl is an anticholinergic. It does the exact opposite thing that Mestinon does.

MrsVgz 07-23-2012 02:47 PM

It seems to really be a no win situation for us MGers. One pill helps one way but hurts in another. I do have a wonderful neuro that listens and isn't afraid to try new things. Hoping for an improved solution for sleep come my appointment Monday!

southblues 07-23-2012 04:33 PM

I'm not sure how good my neurologist is, but at least he is not trying to kill me by over-medicating me. This makes him an unusual doctor. They always want to drug me to death. So I guess he is good.


All times are GMT -5. The time now is 04:05 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.