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-   Myasthenia Gravis (https://www.neurotalk.org/myasthenia-gravis/)
-   -   Trouble sleeping (https://www.neurotalk.org/myasthenia-gravis/173604-trouble-sleeping.html)

BackwardPawn 07-23-2012 07:20 PM

Quote:

Originally Posted by southblues (Post 899928)
But Benadryl is an anticholinergic. It does the exact opposite thing that Mestinon does.

I used to use it for sleep, but have stopped taking it because I felt like it really messed with my thinking and took more than six hours to wear off. I've since done research and found that MG patients may have less acytocholine (sp) in the brain and the benadryl blocks what we do have so I only take it for allergic reactions now.

southblues 07-23-2012 08:50 PM

I suspect that I have less acetylcholine in my brain. I went through a stage where I had terrible memory problems. That problem is now gone. My neurologist thinks that it was all the drugs that I was on, and benadryl was one of them. I don't take it any more.

scrubbs 07-24-2012 10:45 AM

southblues, just wondering what the other drugs your neuro had you stop taking?

We may all learn something to dicuss with our own neuros.

scrubbs

southblues 07-24-2012 03:40 PM

I was the victim of bad diagnostics............

Cymbalta - I was diagnosed with depression based on tiredness. I do not feel that I am depressed.

Clonezepam - This was given due to sleep issues

Ambien - Also for sleep issues (I quit this one myself)

Then I switched from ambien to Benadryl

I am very convinced that these drugs almost killed me.

I was also on Ranexa which is a cardiac drug that is prescribed for chest pain. I quit taking it on my own after I fainted and got injured. (This is a typical side effect of the drug.) The new cardiologist said that I never should have been on that drug.

shopster 07-24-2012 03:53 PM

MG won't kill you
a toxic liver will get you instead.

Lunesta, mest. pred. tylenol aspirin, advil , ambien it is all poison and you are digging your grave early.

FDA
the fraud and deception association

the AMA
american malpractice assoc.

s

southblues 07-24-2012 04:34 PM

Myesthenia gravis can kill you. It can totally suppress respiration until you die.

If my liver dies, it is probably more related to other substances that I abused in my younger days................

MrsVgz 07-24-2012 06:59 PM

Yes, MG can and does kill. I have almost lost my life due to the fact that MG shut my lungs down. I'm blessed that I'm so close to a hospital in times of crisis. Drugs aren't the only option, but sometimes they are the best option.

BackwardPawn 08-10-2012 09:05 PM

Quote:

Originally Posted by shopster (Post 900288)
MG won't kill you
a toxic liver will get you instead.

Lunesta, mest. pred. tylenol aspirin, advil , ambien it is all poison and you are digging your grave early.

FDA
the fraud and deception association

the AMA
american malpractice assoc.

s

As someone who has experienced life with both the right combination of meds and the effects of a disease without meds...I choose the meds, even if it means an early grave. What's the point of life if you can't live it.

Not to say you don't have a point about fraud and issues with the FDA. But these are all things that have to be fixed. Unfortunately, we will probably have to vote in an entirely new congress that is not beholden to lobbyists before things will change and I don't see it happening anytime soon.

shopster 08-10-2012 11:13 PM

On September 11, 2007, Sepracor signed a marketing deal with British pharmaceutical company GlaxoSmithKline for the rights to sell Eszopiclone (under the name Lunivia rather than Lunesta) in Europe.[22] Sepracor was expected to receive approximately 155 million dollars if the deal went through.


However, on average, Lunesta patients still met criteria for insomnia and reported no clinically meaningful improvement in next-day alertness or functioning.

so the study shows it really does not work, except to poison your liver.

http://en.wikipedia.org/wiki/Eszopiclone

alice md 08-11-2012 05:18 AM

Quote:

MG won't kill you
Neither will cancer, plague (and other severe infections).

In fact without modern medicine and its poisonous medications we would all live to be 100, staying young and healthy.

Without modern medicine there would be no diseases at all.

This guy you keep on citing is a fraud. He sells pseudoscience and illusions.
He uses half truths to convince you with very wrong conclusions.

Possibly (and hopefully) your MG is relatively mild and under good control without any medications. But, you are still at risk of having a more severe exacerbation which could endanger your life.

Please watch this movie of an MG patient, prior to there being any medical treatment for this illness. The mortality rate at the time of Marry Walker when patient with MG received no "acidic poisons" was very high.

http://www.youtube.com/watch?v=uRoRs...eature=related


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