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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#11 | ||
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Junior Member
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Rainbow...that is an excellent suggestion. Thank you
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#12 | |||
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Member
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I got on Ambien, and it made me go totally insane. Whacko. I would totally forget stuff from one second to the other. If I can't sleep, I just lay there. I read on my Kindle and it helps just so the book isn't too interesting.
I like pot, but I am terrified of the legal problems. If I get a drug arrest, I will lose my job, my insurance, and life will not be worth living. If it becomes legal, I will certainly try it for the MG. It is not worth the risk since it is illegal. I wouldn't even have to be convicted to get fired. And I will never find a job as easy as this one. |
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#13 | ||
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Junior Member
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Wondering, can pot be any worse than the rest of the meds I'm been on for the past ten years?? Lol
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#14 | |||
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Member
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Sleeping pills, benzodiazepams, narcotic pain killers, tobacco, and alcohol are all legal. Does that make them safer than pot? I seriously doubt it.
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#15 | ||
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Member
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I find I have trouble shutting my eyes completely. Also, prednisone keeps you awake (and I took 20mg accidentally tonight as it looks exactly like my new medicine, hence why I'm still up). I used to use a light mask to help sleep. My new medicine regime is putting me into deep sleeps, though. Its also making the MG worse, though, as they've found I have one disease that makes muscles weak and another that makes them tight.
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#16 | ||
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Member
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Quote:
(Just to be clear, I don't use pot for my MG or SPS as I could lose my job over it and get randomly tested now and then). |
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#17 | ||
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Member
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Maybe others that are pretreated with Benadryl prior to having IG infusions have the same experience as I. I sleep most of the time. Antihistamines make you sleepy.
I have trouble sleeping and maybe 1 or 2 times a week when I want to get a good nights sleep I take 1 and sometimes 2 Benadryl. Tony |
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#18 | |||
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Member
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But Benadryl is an anticholinergic. It does the exact opposite thing that Mestinon does.
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#19 | ||
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Junior Member
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It seems to really be a no win situation for us MGers. One pill helps one way but hurts in another. I do have a wonderful neuro that listens and isn't afraid to try new things. Hoping for an improved solution for sleep come my appointment Monday!
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#20 | |||
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Member
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I'm not sure how good my neurologist is, but at least he is not trying to kill me by over-medicating me. This makes him an unusual doctor. They always want to drug me to death. So I guess he is good.
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