Just had my 6th treatment today and the dose has increased to the point the infusion nurses are surprised at the amount I am receiving. So far, the only side affects I have are nausea for about 3 days and medication takes care of that. The benefits have been that I am completely off Cellcept (after taking 3,000 mg/day for 12 years), my prednison is down to 7 mg/day (headed slowly to zero) and my mestinon usage is down to 1 or 2 pills a day (from 6/day). So far, the benefits have far outweighted the side affects. FYI, I am also stretching my IVIG from every 2 weeks to 3 weeks.

Aside from the mediation reduction, I am feeling better also. I have more energy overall and everyone says my face is more alive and mobile.

Doc is not sure if we will do another treatment in 4 weeks, but I have an appointment for a checkup anyway. The original study did 6 treatments monthly, then bi-monthly for 6 more months. Just have to wait and see what happens.

So far, so good!

What do you mean by mediation reduction or did you mean medication reduction?

scrubbs

Sorry! Meant medication reduction - don't know how the mediation would work???

Great news for you! I pray this positive reaction to the drug will continue. Keep us informed. At this time, I am taking Immuran only. I am controlled at this time but you never know when it will wake up and disrupt your life!

Terrific! Really hope the improvement continues to get even better and better!!