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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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09-15-2012, 09:42 PM | #1 | ||
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Junior Member
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Hola,
I live in Puerto Rico. I started my MG after I had the H1N1 in 2009. Took a while to figure it out because the symptoms had been appearing slowly. I also started to have lung problems after the swine flu. Now I have Pulmonary Fibrosis and MG. I was reading in another site how many medicines and antibiotics that we shouldnt take because makes your muscles weaker. I didnt know that I shouldnt take Magnesium, and I was taking Mag every day. Now I am not sure about Neurontin and Clonopin. I realized that the pain in my body every time I am in the hospital is because of the antibiotics. Now, I have to watch, all the meds. Anyone knows about Neurontin and Clonopin? If is ok to take them? How many of you feel depress with the illness? I am not coping well with all this. The mix of Fibrosis and MG is a bad situation...Plus every time that I get a new symptom or double vision or blury isnt a good day. |
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09-16-2012, 11:55 AM | #2 | |||
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I took clonopin for a while, and I think it made me worse.
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Celeste |
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09-16-2012, 12:02 PM | #3 | ||
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"Thanks for this!" says: | PRgirl53 (09-16-2012) |
09-16-2012, 12:23 PM | #4 | ||
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Senior Member
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Hi, and welcome. I got MG after H1N1 in 2009 also. Actually, I never quite got the flu--I was taking care of my five children who had it, and I started to catch it--I felt deep body aches for a few days--and then got better. It was then that I had my first MG symptoms.
Looking back, though, I think I had some very mild MG symptoms for about six months before that. That whole summer, I was going to be very early and sleeping deeply for twelve hours. I think it's likely that I already had MG, but that the H1N1 made it worse. Abby |
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09-16-2012, 04:29 PM | #5 | |||
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BUT IVE HAD MYASTHENIA FOR 4 YEARS THOU MY NEURO DOESNT THINK I HAVE IT
I SEEM SUCH A ODD BALL I GO TO A LOCAL GROUP IN LINCS ENGLAND AND THAT HAS BEEN MAGIC I HAVE HAD A NEW Dr in jan 2012 who has helped and i alsp have parathryiod raised calcium in my blood i,m thinking that has been helping me in some way thou i,m not at all sure of it ? |
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09-17-2012, 01:31 PM | #6 | ||
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Junior Member
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Stellatum,
I started a support group in facebook and the first story was about this man that after having H1N1 he started all the MG symptoms. I have read before somewhere...that if you get real strong virus can wake up something you had hidding in your body. I had the H1N1 with body aches, lots..lots, fever, cough and real bad mouth taste that wouldnt let me eat. The cough became a pneumonia pretty quick, I know it cause I could hardly talk. That's when I realized how good was to have a phone with text. I am very concerned about the medicines. I take quiet a few because since the hospital I started strong tremors. When they are 'unknown' they call them Essential Tremors. I get the for several reasons, one because of my lungs some or the majority of the smells affected me and I start shaking, then I do get tremors if I am in a line waiting or forcing my body, or sometimes even sleeping I start tremors. Tremors make me anscious because I have no control. For them during the day if I have them I take Ativan, and to sleep I take Klonopin (clonopin). I have other medications but I think I will add them in a whole new subject. Going back to H1N1 I wonder how many had the FLU H1N1 then got sick...seems like it was a trigger. |
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