[Azriel]

Hi Everyone,

I was hoping someone could help me on this forum. I know I need to be evaluated by a neurologist, but I was curious if this sounded like MG. I've been tested for pretty much anything I could be tested for that related to my symptoms I think? (except MG) and I have a dr visit in a few weeks for MG. For background I'm 34 years old and have had no pregnancies. I've always been skinny, so none of these are related to being overweight and I sleep very deeply and get 7-9 hrs a night depending on the night. I have a desk job so I'm not expending a ton of energy so I'm not sure why I feel so bad all the time. Also, if I'm going to be out all day on a Saturday for example, like hiking and a picnic or shopping and lunch in town or something, then I feel HORRIBLY fatigued and tired for a few days afterwards (~4-5 days).

I'm curious if these symptoms sound like MG or Chronic Fatigue Syndrome and, if my MG tests are all negative, how would I know if it's still maybe MG even if my tests are negative or something like Chronic Fatigue Syndrome. Thank you in advance for any feedback.

Here are my symptoms:

Eyes ~A few years
Blurry/hard to focus vision, both eyes but especially in left eye and gets worse throughout the day.
Mild ghosting in left eye during day, severe in both eyes at night
Light sensitivity.
Eyes ache sometimes, especially notice when really fatigued (usually at night)Nystagmus (rarely, a few times a year).

Swallowing ~not sure when this started, kinda on and off for a long time
Sometimes choke on liquid, sometimes have a hard time initiating a swallow with liquid almost like I push hard to swallow or else I'll almost choke.
Solids sometimes stick in throat and need to wash down with liquid.

Voice ~not sure when this started, kinda on and off for a long time
Every once in awhile my voice gets really weak and it’s noticeable when I talk, almost like my voicebox muscle is weak, maybe once every two weeks?

Muscles ~1 year
Weak feeling, especially arms, get tired from just typing on the computer or holding mouse.
Neck muscles are super tight and knotted (on the sides of my neck and top of shoulders).

Generalized Fatigue - ~15 years, but got severely worse over the past few years
Feel weak and tired all the time…I’m best in the morning, but get progressively worse during the day and crash by the time I get home from work (rarely have the energy to make dinner, ususally have to prepare food on Sunday to have dinners ready when I get home during the work week) and I take a 2-3 hour nap on Sat and Sunday.

Trouble breathing ~A few months ago
Only one episode-I had severe problems breathing while walking at a slow pace a short distance to my car after work one day.

Diagnoses:
Gastroparesis – diagnosed by a gastric emptying scan in 2006. It was severe, but now it's mild.
Scoliosis – pretty significant S curvature diagnosed as a teen but seems like it got worse over the past few years.
Mono – had mono in 1996, never felt like I recovered and always required significantly more sleep/rest.
Vitamin D deficiency - I have a deficiency, but I take plenty of it every day so I'm not deficient anymore. I still have to take it every day though.


Tests
Cortisol (to rule out Addisons) – normal
THOROUGH Eye exam (to rule out any kinds of eye problems) – normal
MRI (to rule out MS) – normal
Polysomnography (to rule out Narcolepsy) – normal
Thyroid (to rule out thyroid problems) – normal
Glucose (to rule out diabetes) – normal

Other Notes
Eat healthy, very little exercise (a 15 min walk a few times a week), take vitamin D, B, C, and fish supplements, never did drugs. Always have been pretty skinny.