Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.

 
 
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Old 09-28-2012, 10:17 PM #13
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Join Date: Apr 2009
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jana jana is offline
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Join Date: Apr 2009
Location: Tenn
Posts: 554
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Thanks, Kathie. I tried IVIG and plasmapheresis and had HORRIBLE side effects. Doc agreed -- NO MORE!! Other current meds are not an option due to family history of cancer and my problem with steroid psychosis.

I cannot imagine having to keep MG a "secret". How stressful!!! Bless your heart!!

We know for sure that pesticides make MGers worse. They act on our muscle receptors. Personally, I have noticed that ALL chemicals make me feel worse. I'm now a fanatic about what comes into my house -- cleaners, personal care products, etc.

I religiously use air purifiers -- but, there is a limit to what they can do.

I want to move near the ocean, too. I cannot TELL you how much better I feel there.
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