Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


advertisement
Reply
 
Thread Tools Display Modes
Old 09-29-2012, 06:18 PM #1
StephC StephC is offline
Member
 
Join Date: Jul 2012
Location: Fort Lauderdale, FL
Posts: 286
10 yr Member
StephC StephC is offline
Member
 
Join Date: Jul 2012
Location: Fort Lauderdale, FL
Posts: 286
10 yr Member
Default Plasmapherisis

Are there different kinds of plasmapherisis?

Does it matter who does it?

Why some dr require hospitaliztion and others do as outpatient?
StephC is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
pingpongman (09-29-2012)
Old 09-29-2012, 07:41 PM #2
pingpongman's Avatar
pingpongman pingpongman is offline
Member
 
Join Date: Aug 2010
Location: South Carolina
Posts: 714
10 yr Member
pingpongman pingpongman is offline
Member
pingpongman's Avatar
 
Join Date: Aug 2010
Location: South Carolina
Posts: 714
10 yr Member
Default

Same questions I got.
Mike
pingpongman is offline   Reply With QuoteReply With Quote
Old 10-01-2012, 11:38 AM #3
Brennan068 Brennan068 is offline
Member
 
Join Date: Oct 2008
Posts: 313
15 yr Member
Brennan068 Brennan068 is offline
Member
 
Join Date: Oct 2008
Posts: 313
15 yr Member
Default

The difference is the kind of port that they put in you to do it with. I had mine done in hospital the one and only time I had to have it. The port was a temporary line that would not be safe from a germ perspective out in the community (not saying the hospital is any kind of germ free area.... just that it isn't safe to have that kind of line in your neck when wandering around town.). If I were to have it regularly, they'd put in a more permanent port / pik line and do on an out-patient basis through that line.
Brennan068 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
pingpongman (10-01-2012)
Old 10-01-2012, 03:28 PM #4
BackwardPawn BackwardPawn is offline
Member
 
Join Date: Apr 2011
Posts: 211
10 yr Member
BackwardPawn BackwardPawn is offline
Member
 
Join Date: Apr 2011
Posts: 211
10 yr Member
Default

Quote:
Originally Posted by Brennan068 View Post
The difference is the kind of port that they put in you to do it with. I had mine done in hospital the one and only time I had to have it. The port was a temporary line that would not be safe from a germ perspective out in the community (not saying the hospital is any kind of germ free area.... just that it isn't safe to have that kind of line in your neck when wandering around town.). If I were to have it regularly, they'd put in a more permanent port / pik line and do on an out-patient basis through that line.
They use a tunnelled catheter whenever I've have it. Its similar to a picc line, but routed under the skin differently. I suppose its up to the radiologist which he wants to use. One of the radiologists told me never to do the one thats placed in the neck or groin as the chance of infection is much greater (as Brennan mentioned). One thing I found this last time...I took my Sandisk Clip with me and listened to music while they put the line in--much less unpleasant than it had been in the past (but then there was also the anesthesia nurse who was surprised that I could recall the last line insertions and said she'd do something about that).

There actually are different kinds, based on what they are trying to remove from the blood. For our purposes, they're trying to get antibodies, so there is only one kind. The nurse told me that they can calibrate the machines to remove stem cells and then use those stem cells to cure certain types of cancer. Not really relevant, just thought it was interesting.
BackwardPawn is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
StephC (10-01-2012)
Old 10-01-2012, 06:56 PM #5
StephC StephC is offline
Member
 
Join Date: Jul 2012
Location: Fort Lauderdale, FL
Posts: 286
10 yr Member
StephC StephC is offline
Member
 
Join Date: Jul 2012
Location: Fort Lauderdale, FL
Posts: 286
10 yr Member
Default

I wonder if different machines are better, worse? Older machines versus newer machines from aging perspective as well as from sophistication, technology perspective?

For example, many times DUI arrests based on breathalyzer test results can sometimes be tossed by discrediting the maintenance of the machine used or even the operator...wonder if same is true with regard to plasmapherisis machines
.
StephC is offline   Reply With QuoteReply With Quote
Old 10-01-2012, 08:30 PM #6
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
Default

Steph, Has your doctor considered IVIG? Plasmapheresis is often used during an MG crisis situation and not as a regular treatment. I know there are some patients who do get it regularly but it's usually because their MG is more severe or "brittle." And, yes, with some patients it does work better than IVIG.

You really need to know all of the potential side effects of it. It's not without complications.

Every patient is different. Some patients have more than one condition that makes it important to have it done in a hospital setting. Just have a good conversation with your neuro about all of this.

Annie
AnnieB3 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
StephC (10-02-2012)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off



All times are GMT -5. The time now is 12:49 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.