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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | ||
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Are there different kinds of plasmapherisis?
Does it matter who does it? Why some dr require hospitaliztion and others do as outpatient? |
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"Thanks for this!" says: | pingpongman (09-29-2012) |
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#2 | |||
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Same questions I got.
Mike |
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#3 | ||
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The difference is the kind of port that they put in you to do it with. I had mine done in hospital the one and only time I had to have it. The port was a temporary line that would not be safe from a germ perspective out in the community (not saying the hospital is any kind of germ free area.... just that it isn't safe to have that kind of line in your neck when wandering around town.). If I were to have it regularly, they'd put in a more permanent port / pik line and do on an out-patient basis through that line.
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"Thanks for this!" says: | pingpongman (10-01-2012) |
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#4 | ||
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Quote:
There actually are different kinds, based on what they are trying to remove from the blood. For our purposes, they're trying to get antibodies, so there is only one kind. The nurse told me that they can calibrate the machines to remove stem cells and then use those stem cells to cure certain types of cancer. Not really relevant, just thought it was interesting. |
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"Thanks for this!" says: | StephC (10-01-2012) |
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#5 | ||
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I wonder if different machines are better, worse? Older machines versus newer machines from aging perspective as well as from sophistication, technology perspective?
For example, many times DUI arrests based on breathalyzer test results can sometimes be tossed by discrediting the maintenance of the machine used or even the operator...wonder if same is true with regard to plasmapherisis machines . |
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#6 | ||
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Grand Magnate
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Steph, Has your doctor considered IVIG? Plasmapheresis is often used during an MG crisis situation and not as a regular treatment. I know there are some patients who do get it regularly but it's usually because their MG is more severe or "brittle." And, yes, with some patients it does work better than IVIG.
You really need to know all of the potential side effects of it. It's not without complications. Every patient is different. Some patients have more than one condition that makes it important to have it done in a hospital setting. Just have a good conversation with your neuro about all of this. Annie |
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"Thanks for this!" says: | StephC (10-02-2012) |
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