Was on here a quite a few few years ago. I have had a good run of having mild symptoms these last few years and only taking Mestinon. I had symptoms that ended in being diagnosed with a Thymoma ,Stage I encapsulated, and MG in 2005. My symptoms have gotten increasingly worse over the past 6 months. I know they are still not as bad as many of you, but my new neurologist wants to start me on a low dose of Prednisone. I am terrified of this as well as wondering whether my Thymoma has returned. I am waiting on a CT scan for that. I was rxd the Pred 4 days ago, but have yet to start it. I feel like a big baby right now, but am full of so much anxiety i do not know where to turn

I agree with you about the Prednisone. Some of us don't do well on it. I won't go into detail with my problems but think real hard about it.
Mike

I'm 18 months since diagnosis, 3.5 years since symptoms, 15 months since starting prednisone. Can't do without it. Mestinon (30 4x/day) isn't enough, so I have prednisone (30 mg/day) and Imuran (150/day) too. I'm considered mild-moderate seronegative generalized MG. I had a robotic thymectomy last December, and have worsened since then, mostly in the last couple of months.

Prednisone has given me the moon face, curved upper back, fatty chin, munchies. I am on weight watchers to help maintain the weight that comes along with the munchies. I do not have stomach issues with these meds. I haven't had tests in awhile to see what it's doing to me internally, but like I said, the pros outweigh the cons for me. I'd be working part time instead of full time and unable to spend quality time with my kid if not for the prednisone. I was on 25 mg/day for a long time, tried to wean down to 15 earlier this year, and now am up to 30/day as of a couple of weeks ago.

Best wishes to you!
Susan