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Vitamin D3??

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Old 10-21-2012, 12:29 PM #1
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Default Vitamin D3??
I don't remember who posted it or in what thread, but a while back somebody posted a link to a study that showed that MG patients who took D3 showed improved strength. I had some 2000 unit D3 tablets that I bought a while back and didn't take. I started taking them two or three weeks ago. I may be a little bit better. I am not one that placebo effect works very well with because I am so skeptical. It could be placebo, or maybe it has helped. Or maybe it has just been a good few days. Has anybody experienced this?
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Old 10-21-2012, 12:32 PM #2
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I take vitamin D3. I haven't noticed any improvements, though MG fluctuates so much for other reasons that I can't be sure--maybe I'd be worse without it, who knows. But the study said that MG patients tend to be low on D3 (which I was, according to my blood tests). Even if it doesn't noticeably improve your symptoms, it might protect you from other autoimmune diseases, or from osteoporosis, or from the flu.

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Old 10-21-2012, 06:58 PM #3
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I was recently given a prescription for Vit D 10000 mg per week. I took it on Thursday and my walking has been better. My symptoms are also variable so I didn't give it much thought until I read this thread. I will have to keep an eye on it.
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Old 10-21-2012, 09:15 PM #4
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My doctor instructed me to take 10,000 of D3 a day. Although, I have no way of knowing if that specifically is making me feel better or the other treatments I'm on (Mestinon and IVIg) or some combination of them.
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Old 10-22-2012, 08:01 AM #5
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Well at least I am pretty sure it is not hurting me. I guess I'll keep taking it.
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Old 10-25-2012, 09:49 AM #6
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I saw an article today that excess Vit D can cause liver and kidney problems. Im going to ask my neurologist about this when I see her later today.
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Old 10-25-2012, 09:54 AM #7
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They have me on 50,000 units twice weekly and my neuro said my body would flush out what ever it did not need.
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Old 10-25-2012, 09:59 AM #8
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Lightbulb
If you are taking RX version D which is D2, it won't work well.
Also Vit D is fat soluble. The body does not flush it out. It is stored in fat.

New studies have shown that RX D2 doesn't work.
http://jcem.endojournals.org/content/89/11/5387.long
This is only one study.
A newer one found D2 87% less effective:
http://articles.mercola.com/sites/ar...d-mistake.aspx


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Originally Posted by rogerm213 View Post
They have me on 50,000 units twice weekly and my neuro said my body would flush out what ever it did not need.
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