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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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10-30-2012, 11:27 AM | #1 | ||
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Quote:
Originally Posted by AnnieB3 My MG has stunk because socializing uses way too many muscle groups all at once. And now I'm "trying" to rest up in order to carve pumpkins tomorrow. Yeah, we'll see. Annie Quote:
Wow. Thanks Annie and Anacrusis. (These are their statements from another thread). This too, is how MG affects me. Thanks to Annie and Anacrusis because their honesty - "affirmed", "relieved" and/or "validated" how I (often) feel. Even with relatively stable MG - (knock on wood) - after many years of treatments and a couple of MG hospitalizations - I still encounter this "phenomenom" of MG becoming exacerbated due to "socializing" or sometimes, just simply watching and listening. Thankfully, at least my family and a few of my friends and neighbors understand, (well, they tolerate me). Sometimes this feels like this is one of the most difficult parts (for me) of the reality of MG.... Except for not being able to breathe, or to walk very far or to need to sit in a recliner to type.......) Hmmmm...... the breathing part TRUMPS everything. (been there, done that.....) But - how about others with MG? Does this sound to familar to you - in addition to Annie and Anacrusis and me (aka - SoftTalk)? |
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"Thanks for this!" says: | AnnieB3 (11-01-2012) |
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