My guess is the virus. When I get sick my MG really goes down hill.
Mike

lisa;

Did your neuro schedule more infusions?

If your virus is better, do you feel better overall?

I always have worse MG symptoms when I'm ill from something else. Even a cold sore.

Hope that's the case with you.

scrubbs

Lisa
When you said 2 infusions is that 2 bags, over 2 days? Do you know what actually you received (details?) same brand each time?

(I took pictures of the bag and labels to have to refer to later) Mine was Baxter brand 10% 35,000 mg (350 ML) daily for four days. I am so far responding well to IVIG and will be going to my neuro on the 15th, expecting to get setup for monthly treatments. My impression is best to try to keep with same manufacturer, is that your understanding?

If you are up to and can/will, please post update how your follow-up goes. I will try to do likewise as I think the information is helpful for not just you and I but for others to follow...thanks!

Stephanie

Hi Stephanie,

I will be having two bags in two days. I didn't find out what brand they used in the hospital, I wish I had. I will try to find out the brand before my next infusions. Insurance has approved but waiting for the visiting nurse to schedule my home infusion.
Lisa

Hi Scrubbs,

Yes Dr. Ginsberg has scheduled two more one day rounds of IVIG and the visiting nurse will come to my home. my insurance has approved it but have not yet scheduled the infusion. Hopefully I will hear something before the weekend. I am feeling slightly better since I finished my med for an upper respiratory infection, but still having weakness.

Lisa