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Old 11-04-2012, 10:04 AM #1
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Thanks! So glad to hear again that I am not alone in that.. it drives me absolutely CRAZY!!! It's in my weak areas.. and happens when I over do it.. and drives me up the wall.. it's like I can feel the weakness or something strange!?!
Hi again.... yep same thing happens to me too. I just rest when it does and pop a mestinon. My dr. told me to have a quick shot of bourbon or whatever i like....haha
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Old 11-04-2012, 07:33 PM #2
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wow, glad to hear that I'm not alone, but never glad other people have to have my symptoms! :0

Does anyone else's muslces almost feel like they are vibrating with weakness- does that even make any sense?? When my symptoms flare, i cant' raise my arms (due to shoulder weakness) and they almost feel like they are shaking with weakness..

Stephc- wow, can't imagine getting lasik twice!!! My vision is so strange, sometimes wearing glasses makes it seem more double (it's like the double is more clear, which is nauseating)!
i know that feeling. My body feels like it is trembling with weakness. In the evening, you can see my eyelids quiver like jello.
kathie
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Old 11-04-2012, 08:22 PM #3
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For those like me that can't type. Or having trouble typing I recommend the voice activated software Dragon that will type for you. You have to correct minor problems but it gets better the more you use it. You can get it at Walmart or Office Depot, the basic one is all you need for about $75

Mike
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"Thanks for this!" says:
StephC (11-04-2012)
Old 11-04-2012, 09:44 PM #4
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wow, can't believe how many of yall have similar symptoms.. and yes, the fact that I generally "Look" well makes it hard for others (esp drs) to understand how my body feels and works.. today it was warm here and my face drooped down so badly and vision just got worse too

As far as the driving goes.. yes i don't feel very confident when I drive anymore, as my vision is just so weird, night is definitely worse as well- the double vision is much more obvious with the lights.

Do any of yalls eye muscles feel sore ever? As far as typing goes.. when my symptoms get bad (like right now - 4 weeks out from my last IVIG- the longest time I have gone in a whole year! I have it tomorrow yay).. my fingertips get so floppy.. all of my muscles are weak, and fingertips are so floppy it does make it hard to type. Yall have floppy fingers??

This is all so weird, and yes it seems so hard for my friends to get it.. this forum is a life saver!
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Old 11-05-2012, 10:20 PM #5
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Does anyone else have this problem- When I focus on something up close for a bit, then look away it's like my focusing muscles of my eyes get "stuck" or take a while to get back to "normal".. my vision is extra weird for a while afterwards..
I have had MG for almost 8 years but experienced this for the first time this past year during what I will call my relapse. I call it googly eyes. Not double vision but they just could not focus, especially late at night or when I was tired.
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