My doc had a hard time believing that keeping from falling over into your dinner plate and washing of hair had anything to do with muscle weakness - and that problems swallowing could not possibly be related. So coming to the office with a pair of dysfunctional ears on top everything was not going to help my already dwindling credibility!

wild-cat & bny806….I have that exact same thing going on as well. Some of mine is due to noise exposure:

http://www.agius.com/hew/resource/nihl.htm

According to one ENT specialist I have hyperacusis AND recruitment which seems like two contradicting conditions.

Hyperacusis started (very memorably so) in pregnancy. It fluctuates. I can sometimes hear when a TV is just on standby in another room. Iīm not able to separate the conversation from the background noise either, Steph. And wild_cat, Iīm the same, protective reaction time to sudden loud spontaneous sounds is way too slow and so I reach the threshold of pain way too early.......

This thread has been really helpful. I'd been wondering what causes sound sensitivity.

The largest issue for me has been dealing with sounds over the cellphone. If my friend is cleaning or clanking things in the background while we're talking on the phone, I start jumping out of my skin and have to hold the phone away. We have an agreement now to hang up if he's going to run a blender or wash dishes etc.
Also, when he gets caught up in a story and starts talking in a higher pitch on the phone, I lose ability to understand what the heck he's saying.

Simultaneously, I've noticed a significant loss of hearing in my left ear. Prior to the diagnosis or having researched anything about MG, I was wondering aloud how I could be more sensitive to sound while simultaneously experiencing hearing loss.

I am still wondering about that!!!

I wonder if you can have hearing loss at a certain frequencies and sound sensitivity at others..........

I got a diagnosis of hyperacusis and recruitment many years ago.

ī3. Recruitment: This condition is ALWAYS a by-product of a sensorineural hearing loss. (If you don't have a hearing loss, you can't have recruitment.) A person with recruitment perceives volume increases much faster than the actual volume increase. As a result, sounds rapidly become too loud to stand. A hard of hearing person may have both recruitment and hyperacusis at the same time.ī

http://listen-up.org/med/hyperacu.htm

Those symptoms that you describe I had for years. Also taking the dishes out of the dishwasher and them clanking against each other in the cupboards was murder. Working with unpredictable decibels at my job was even worse.
(I was sent on a tinnitus course but couldnīt understand why as I didnīt have those symptoms)

It is odd that my own myasthenic weakness started to improve and my ears happily followed suit


Myasthenic ears???.......Impossible!!!!!!!!!!


Anacrusis

Hyperacusis is one sign of low B6 levels.

You can find many sites on the net about this.

Thanks.... I also found this and had a quick read....

http://neurotalk.psychcentral.com/thread168076.html

I never had B6 but the B12 was always actually pretty high..

What was "high"? There is no upper limit to B12.
Lab ranges are just estimates, and really, the lows are concerning...many people are walking around with low values, and their doctors call it "normal"

You are in another country, yes? Post your values here along with the concentration either pg/ml or pmol/L and I can convert it for you.

Most countries but not all use SI units:
http://www.unc.edu/~rowlett/units/sc...ical_data.html

Dr. Snow in US wrote the major turning point paper on B12 in
1999, and in it he found that people with moderately normal B12 could still present with neurological symptoms. He suggests
therefore to take B12, extra.
His paper link can be found here:
http://neurotalk.psychcentral.com/post698522-70.html

If you are interested further please read the whole B12 link at PN in the stickies. I have genetic information there as well that
leads to poor B12 utilization.

High B12 readings, above 1000 US units may point to other disease states in the body. Liver problems, kidney problems, blood cancers, etc. When this happens and NO vitamins are being taken, it is a warning for the doctor to look for the culprit.
But the levels themselves are not "toxic"...they are only a flag.

I dug up my blood tests from my journal and there is no pg/ml or pmol/L on the sheet. The normal range only states 140-680 and mine was 600. I thought that was OK! The only other tests that I ever wondered about were always low liver panels (ALP, Gamma GT, Alat etc - donīt find right now but they are always asterisked. But the doc just said it was bad if they were high and that is OK with me.)

Yes I am interested in reading more about vitamins. Thanks for all this valuable info look forward to reading it

Anacrusis

My hearing has been going over the years. I get the loud roar in my head like I'm in a factory, or like a motor is running in my head, but I am also sensitive to sound. The other day my daughter was just talking and it seemed as though she was screaming, but she wasn't. I think the roaring noise is tinnitus, but I'm not sure. I always forget to tell the doctor about it since I've got too many issues already. I also get migraines, but the migraines are usually visual, without the headaches, and I noticed noise bothers me when I get the migraines. The visual disturbances were strange: seeing rainbows from both eyes followed by brief total blindness. Another time I saw geometric shapes that seemed to move towards a spiral and blocked my visual field for a few hours. So, I imagine sound can get pretty messed up with migraines too. I know my issues have nothing to do with the b vitamins because I take b vitamins every day. I also take cod liver oil for the noise and although it doesn't get rid of the roar, it helps.

I remember my hyperacusis started right bang in the middle of pregnancy.

I wonder if a few years later when I had 12 months of antibiotics circulating in my blood stream it probably didnīt help matters that much. In fact it probably didnīt help anything much after the infection. I read it can also deplete potassium and alter other processes.....(glucose/proteins)

Wow, I'm not the only one! I'm so glad to have come across this thread! I noticed my change with certain sounds at high pitches in June 2010 (and then I had my MAJOR MG outbreak/discover that September). I bet that's what it was. And here I was thinking the band Motorhead was what finally did my hearing in lol (KIDDING! ).


I'm a huuuuuge concert going (heavy metal mainly so you can imagine, quite loud & distorted). I never used to wear earplugs, but then in 2010 (June), I noticed that I just couldn't take certain pitches & the volumes anymore (comfortably). I started to feel freaked out for some reason, and its funny because I felt like I NOTICED the change happen and can pinpoint the time. It didn't seem gradual. I experimented with those cheap foamy earplugs and found that it helped. Now I have a nice pair that helps take away from the distortion (which is what gives you that "ringing" after a concert) and you can still hear the concert loud, but comfortably. It's helped a LOT and I've been doing it ever since. Probably should have done it sooner hehe.


There are a few other things though that I absolutely can NOT stand...like some of those air blow dryers in public bathrooms. The one at my work is really loud, and when the sound/pitch changes because it's blowing on the persons hands, it makes a noise that I just cannot tolerate.