Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


advertisement
Reply
 
Thread Tools Display Modes
Old 12-11-2012, 11:04 AM #11
Quandry's Avatar
Quandry Quandry is offline
Member
 
Join Date: Nov 2012
Location: Arizona
Posts: 131
10 yr Member
Quandry Quandry is offline
Member
Quandry's Avatar
 
Join Date: Nov 2012
Location: Arizona
Posts: 131
10 yr Member
Default

I've only started pursuing a diagnosis for the past ten years but a friend reminded me recently of a time, about twenty years ago when I worked as a house cleaner. The job was more labor intensive than I was used to and I was exposed to a lot of chemicals. After work when my friend would talk to me, my head would fall forward, and I'd fall asleep. There were times that I'd even fall asleep while eating dinner. I was so exhausted and looking back on it now, I think not only the use of muscles was my problem, but the exposure to chemicals. I was only able to work at this job for about a month.
Quandry is offline   Reply With QuoteReply With Quote

advertisement
Old 12-11-2012, 11:13 AM #12
Lesmom96 Lesmom96 is offline
Junior Member
 
Join Date: Oct 2012
Location: Michigan
Posts: 24
10 yr Member
Lesmom96 Lesmom96 is offline
Junior Member
 
Join Date: Oct 2012
Location: Michigan
Posts: 24
10 yr Member
Default

Quote:
Originally Posted by Stellatum View Post
Barbara,

If you're not doing it already, I highly recommend detailed journalling. I thought I was keeping track of triggers and such, but I was really surprised by what I discovered. I rated my symptoms every day on a scale from one to ten, and also my level of activity, again from one to ten. Then I made a line graph (OK, I'm a nerd, I really like graphs!). I was surprised to find out that my activities were affecting me much more than I'd realized--but that there was a one- or two-day delay. In other words, a busy day on Monday will knock me out on Tuesday or Wednesday. I think for some MGers, it's even Thursday.

Abby
My symptoms too are variable and I believe I have delayed fatigue as well, but I have not been journaling so I can't go back and look at trends. I will start this today. My husband has been encouraging me to do this for a few months and bought me a nice journal that has everything from weather, weight, meds, activity, body functions and diet to track but I was resistant to using it. Thank you.
Lesmom96 is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
I for one am tired of this. Jim091866 Parkinson's Disease 2 11-10-2012 07:42 PM
Tired of hugs, tired of everything! KittyLady Multiple Sclerosis 7 06-21-2012 07:00 AM
Tired Kat 60 Multiple Sclerosis 8 04-30-2009 07:19 PM
So tired... karousel Multiple Sclerosis 26 02-16-2009 08:29 PM
I'm so tired of it all... Momma's Kids Social Chat 16 01-13-2009 10:54 PM


All times are GMT -5. The time now is 08:37 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.