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Old 12-13-2012, 08:33 AM #21
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Originally Posted by wild_cat View Post
I don't think I'm gonna risk that...I felt like I was either going to have a heart attack or stop breathing. I will do anything to prevent feeling that way again!
I don't think there are enough phosphates in there to do this.
That quote was referring to use of products like Fleet's PhosPhoSoda, which was taken off the market recently for safety concerns. Magnesium phosphates were taken in high doses to clean out the bowel, prior to Xrays and other tests of the GI tract. Enemas also are culprits.

Phosphate however is very common and in almost all foods we eat.
http://www.umm.edu/altmed/articles/p...rus-000319.htm

What I am thinking is that you have some form of acid/base balance problem, perhaps from shallow breathing due to MG issues? Hyperventilation is one cause of tetany, and paresthesias. Our blood is carefully buffered by the body, but altered breathing patterns can wreak havoc with that balance.
This article explains it well:
http://health.nytimes.com/health/gui.../overview.html
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Old 12-13-2012, 08:36 AM #22
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It's very complex, yet very simple.

People are smart enough to create substances that fool their senses and make their life more comfortable-in the short and intermediate term.

They are not smart enough to realize that there is a limit to the burden of foreign materials they can put on the human body. They are not smart enough to realize how little they truly know about the normal and abnormal physiology and how little they truly know of the effects of seemingly minor alterations on human health.

The fact that they do not see immediate detrimental results makes them think that this practice is safe. Their greed makes them create more and more such substances (as previous ones have been proven to be safe).

We now see more and more, the detrimental results of this approach. If you bother to read (and not ignore) you will see on a nearly weekly basis results of studies showing endocrine dysfunction, neurotoxicity, fertility, cancer caused by such seemingly safe substances.

I would personally suggest that you stop eating processed foods. I would clearly not use more than the recommended amount of such foods. I would not use any product which has the words- artificial flavor or fragrance on it.

Those seemingly innocent names hide a myriad of potentially toxic materials. Those are considered "professional secrets" and therefore the law does not require disclosure of the actual ingredients.

There is nothing healthy or nutritious in the ingredients you mentioned:

Sugar- has a stimulant effect on the brain. It should come from fresh fruits in moderate amounts and not as a highly concentrated processed additive.
corn syrup- is toxic to the liver, just like alcohol. modified whey-why modified? and what is the source?
cocoa (processed with alkali)-why processed.
hydrogenated coconut oil-why processed
marshmallows (sugar, corn syrup, modified corn starch, gelatin, artificial flavor),
nonfat dry milk-what is the source and why dry?
calcium carbonate
, less than 2% of: salt, dipotassium phosphate, mono- and diglycerides, artificial flavor, carrageenan-those are supposedly safe levels of synthetic materials that shouldn't enter your body at all. They are added because they fool your senses and make the product look and taste good.
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Old 12-13-2012, 08:47 AM #23
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Quote:
Originally Posted by mrsD View Post

What I am thinking is that you have some form of acid/base balance problem, perhaps from shallow breathing due to MG issues? Hyperventilation is one cause of tetany, and paresthesias. Our blood is carefully buffered by the body, but altered breathing patterns can wreak havoc with that balance.

/overview.html[/url]
At the time these symptoms came on, my breathing was normal. As the symptoms began I started feel the urge to take big deep breaths but couldn't - I wouldn't describe this as hyperventilating, since my breaths were not shallow and rapid -- they were shallow, infrequent and sporadic.

I realize I was still having residual effects from the tetany symptoms this morning, but now they are beginning to wear off.

I have just been trying to prepare some lunch. I become very breathless on standing/moving and my chest feels terrible even sitting still. It is as if I forget to breathe on every breath and have to remind myself to take another one. It feels more effort to breathe than not to breath, as my body feels like doing. I feel faint and very confused, I can't think straight.

Surely if my symptoms were cause by breathing issues, I would be experiencing tetany now, as a consequence of increased difficulty breathing, rather than after the tetany symptoms have began to subside?
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Old 12-13-2012, 09:00 AM #24
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I think there is a much more simple explanation: aspirin should not be taken by MG´ers, paracetamol should be used instead...!
Maurice.
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Old 12-13-2012, 09:08 AM #25
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Unfortunately I can't blame this one on aspirin!

To clarify -- my overwhelming sensation is one of underbreathing - not over breathing, as in the case of hyperventilation. Secondly, the numbness and tingling in my lips and tongue was the very first symptom I experienced, before I began having the difficulties with breathing.
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Old 12-13-2012, 10:01 AM #26
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Quote:
Originally Posted by mrsD View Post
The average fasting glucose is not 24 hrs...it is nothing by mouth after midnight and testing first thing in the morning.
Oops, I meant 12 hours.
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Old 12-13-2012, 10:42 AM #27
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What is teteny and how does it apply to MG?
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Old 12-13-2012, 11:23 AM #28
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It is the symptoms I described at the beginning of this post; extreme muscle hyperactivity, difficulty taking a deep breath, agitation with no clear cause, numbness/tingling in the lips and tongue etc. I am not sure how it relates to MG which is why I asked the question -- however, I'm still not sure what the answer is!
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Old 12-13-2012, 10:41 PM #29
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wildcat- have you looked into isaacs syndrome?? I also had very similar symptoms as you, especially in the begninning.. numbness/tingling, and then I felt like my muscles were just doing this constant "thing" i can't even describe it.. i told my husband almost 2 years ago now.. that it felt like what tetnus would feel like.. like fingernails on a chalkboard, but inside my muscles at all times.. even while I slept.. I felt like I would wake up feeling like I was beat to death! I Have had bulbar and respiratory signs and well every other sign too!
Anyhow.. Isaacs or neuromyotonia can cause a lot of these symptoms... My needle emg is always negative.. but i still have these symptoms, just not as bad at all with ivig now..
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Old 12-13-2012, 11:17 PM #30
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Wild_Cat, It's not hyperactivity but HYPOactivity. The numbness and tingling could be not enough oxygen getting to your tissues. "Under breathing" is the inability to take a breathe in. That's classic MG. Being unable to breathe and get oxygen can cause agitation. Other things like low calcium (see my post to you) can cause muscle twitching. Low sodium can cause agitation. You need a real DOCTOR!!!

If you feel like this again, you need to be in an ER.

Annie
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