[AnnieB3]

I'm starting this post because I don't want this getting lost in the other ones.

You need to get to a doctor. Simply the rash alone is enough to go in. Anything new or different is when you should go see a doctor. Staying at home trying to figure out what is going on is obviously making you nervous. Only a doctor should be trying to figure out what is going on.

Have you taken a photo of your rash? If not, please take a few in case it goes away.

There are many causes of a rash. For example, if you had an allergic reaction to a protein in a food, then it might look like hives. A rash is not a disease in and of itself but a SYMPTOM of something else going on. You need a doctor to determine why you got a rash.

The rash may or may not be related to food. As Mrs. D said, carrageenan is a horrible substance, one which they use to de-ice planes! But, having said that, it might not even be why you had your rash or other symptoms!

As far as tetany, you've gotten a lot of good feedback on that from Mrs. D and Alice. What I'm more concerned about is a possible electrolyte imbalance, for whatever reason. It sounded more like you were afraid of getting tetany, not that your symptoms actually reflected tetany. By putting a specific term on symptoms (i.e., tetany), instead of describing those symptoms, you are both making an assumption about what it is and might be missing what it really is. This is something, again, only a doctor is qualified to figure out.

You need to see your primary doctor and have a conversation with an expert to help figure things out AND alleviate any fears you might be having.

Please, do not rely on a forum to help you with medical issues. Yes, we can inform people on MG-related issues but we are absolutely no substitute for seeing a doctor. I'm not trying to be harsh! But you obviously need to see your primary doctor as soon as you can.

I've had allergic reactions in the past that create a rash. The best place for you if you get new or alarming symptoms is the ER.

When you do have your breathing tests and EMG, you need to know that the people running those tests do not have the ability or the legal authority to answer a lot of questions about medical conditions. They are simply running tests. It's after the tests, when you have a follow-up appointment with a pulmonologist and/or neurologist, that you should bring up any questions you have about your condition.

It's quite possible that you have more than one thing going on with your health. MG patients do not have rashes. So, again, the rash needs to be checked out as soon as possible.

I realize that any diagnostic process is very frustrating and can make you scared. I'm sorry you are going through so much. I hope you can try to relax and get the help you need. If you can write down your symptoms, when they happen, etc., it will help you and whatever doctors you see to figure this out. I really hope you will get help soon.


Annie