I'm starting this post because I don't want this getting lost in the other ones.

You need to get to a doctor. Simply the rash alone is enough to go in. Anything new or different is when you should go see a doctor. Staying at home trying to figure out what is going on is obviously making you nervous. Only a doctor should be trying to figure out what is going on.

Have you taken a photo of your rash? If not, please take a few in case it goes away.

There are many causes of a rash. For example, if you had an allergic reaction to a protein in a food, then it might look like hives. A rash is not a disease in and of itself but a SYMPTOM of something else going on. You need a doctor to determine why you got a rash.

The rash may or may not be related to food. As Mrs. D said, carrageenan is a horrible substance, one which they use to de-ice planes! But, having said that, it might not even be why you had your rash or other symptoms!

As far as tetany, you've gotten a lot of good feedback on that from Mrs. D and Alice. What I'm more concerned about is a possible electrolyte imbalance, for whatever reason. It sounded more like you were afraid of getting tetany, not that your symptoms actually reflected tetany. By putting a specific term on symptoms (i.e., tetany), instead of describing those symptoms, you are both making an assumption about what it is and might be missing what it really is. This is something, again, only a doctor is qualified to figure out.

You need to see your primary doctor and have a conversation with an expert to help figure things out AND alleviate any fears you might be having.

Please, do not rely on a forum to help you with medical issues. Yes, we can inform people on MG-related issues but we are absolutely no substitute for seeing a doctor. I'm not trying to be harsh! But you obviously need to see your primary doctor as soon as you can.

I've had allergic reactions in the past that create a rash. The best place for you if you get new or alarming symptoms is the ER.

When you do have your breathing tests and EMG, you need to know that the people running those tests do not have the ability or the legal authority to answer a lot of questions about medical conditions. They are simply running tests. It's after the tests, when you have a follow-up appointment with a pulmonologist and/or neurologist, that you should bring up any questions you have about your condition.

It's quite possible that you have more than one thing going on with your health. MG patients do not have rashes. So, again, the rash needs to be checked out as soon as possible.

I realize that any diagnostic process is very frustrating and can make you scared. I'm sorry you are going through so much. I hope you can try to relax and get the help you need. If you can write down your symptoms, when they happen, etc., it will help you and whatever doctors you see to figure this out. I really hope you will get help soon.


Annie

I agree with Annie,

One of the hardest things is to be your own physician.

I was forced to that corner more than once, but I don't wish it on anyone.

And I had all the tools and knowledge required.

In retrospect I had an excellent understanding of my condition, found the optimal management approach but realized time and again, what I knew from my own practice-A physician is not only someone who makes a brilliant diagnosis and prescribes the proper medication, he is also (and not less important) a true partner in a very hard journey.

That is why, despite horrible experiences and being fully capable of making my own medical decisions, I kept on searching for someone I could trust.

You may find this funny, but now I don't even take a food supplement without consulting my neurologist about it.

Thank you so much for your advice, I really appreciate everyone's imput and value what you've all said.

I attended my GP last night about the symptoms and took a list so I didn't forget anything, and because I can't really make myslef understood, with the breathing and speech issues.

They agreee it is an allergic reaction but say it is very difficult to determine from what.

When they inflated the blood pressure monitor cuff on my arm, it started to jerk uncontrollably. This casued me to collapse and fall off my chair. My throat swelled, I went bright red in the face, and for about thirty seconds I couldn't breathe at all. When I was able to breathe again, I was very out of breath. It took some time for me to be able to sit up as everything was so weak I couldn't support my body. I couln't hold my head up and I wasn't able to control the pitch of my voice, or articulate any words, arms and legs were completely useless.

After giving me some time to recover they tried the bp monitor again. The same thing happened. My arm started to jerk, pushing things off the GPs desk, hitting my GP, finally finishing in a massive whole body jerk that threw me off my chair.

This has never happened to me and I find it extremely distessing.

The GP was unable to provide any relief for my symptoms, as I am allergic to antihistamine (it makes my muscle weakness much worse) and we fear steroid treatment or similar my potentially cause a similar reaction, so not worth the risk.

They also didn't feel that sending me to hospital was a good idea, since it was felt I would probably be sent home again.

So I am home, and not feeling at all myself still, but will just have to sit it out until Monday.

Thank you for being here.

I do not understand how they could possibly have sent you home and on a long journey as well.
Sounds very daring of them not to have sent you to hospital and put you under observation until your appointment in 3 days time.

Keeping fingers crossed that they keep you in on Monday until they find out some answers and that your parents can be insistent on your behalf.

Hang in there Ms wild-cat....