What is teteny and how does it apply to MG?

It is the symptoms I described at the beginning of this post; extreme muscle hyperactivity, difficulty taking a deep breath, agitation with no clear cause, numbness/tingling in the lips and tongue etc. I am not sure how it relates to MG which is why I asked the question -- however, I'm still not sure what the answer is!

wildcat- have you looked into isaacs syndrome?? I also had very similar symptoms as you, especially in the begninning.. numbness/tingling, and then I felt like my muscles were just doing this constant "thing" i can't even describe it.. i told my husband almost 2 years ago now.. that it felt like what tetnus would feel like.. like fingernails on a chalkboard, but inside my muscles at all times.. even while I slept.. I felt like I would wake up feeling like I was beat to death! I Have had bulbar and respiratory signs and well every other sign too!
Anyhow.. Isaacs or neuromyotonia can cause a lot of these symptoms... My needle emg is always negative.. but i still have these symptoms, just not as bad at all with ivig now..

Wild_Cat, It's not hyperactivity but HYPOactivity. The numbness and tingling could be not enough oxygen getting to your tissues. "Under breathing" is the inability to take a breathe in. That's classic MG. Being unable to breathe and get oxygen can cause agitation. Other things like low calcium (see my post to you) can cause muscle twitching. Low sodium can cause agitation. You need a real DOCTOR!!!

If you feel like this again, you need to be in an ER.

Annie

never thought about it that way Annie- that's a very good point... my muscle agitation is always worse after exertion.. wonder if it's due to lack of oxygen? Right before I was admitted one year ago, i couldn't take a breath in before a sneeze.. it was the strangest thing.. humm???