Oh, and for anyone interested in my puzzle, add this: Mestinon doesn't help me at all.

Abby

Abby,
Are you sure it's MG and not something else?

Tracy,

First of all, how are you? You are dealing with chronic Lyme as well as MG, right? I saw in another post you said you'd been in the hospital, but I wasn't sure if you meant recently, or if you were telling about a past episode.

I'm being treated for MG with Imuran. I'm sure enough that I have MG to continue to take the drug. But I'm not 100% sure. I like to continue to explore other possibilities, but only in ways that don't disrupt my treatment.

I'm looking into the possibility of CMS, though it would be unusual (but not unheard of! Exhibit A: Mike (pingpongman) and his relatives) for someone to have no symptoms until age 43.

I continue to consider the possibility of hypo- or hyperkalemic periodic paralysis, since I have "spells" of intense weakness in addition to my more typical MG symptoms. I'm trying to find a correlation between what and when I eat and these spells.

Those are the only other conditions on my mind right now. I have no pain and no muscle stiffness and no twitching. I'm not worse than I was three years ago, when all this started. My symptoms are very variable, hour by hour, day by day, week by week and month by month. These characteristics rule out a lot of other diseases.

Of course, I'd be interested in any other ideas that pop into your head.

Abby

It sounds pretty confusing. My symptoms vary like yours do and are unpredictable which is very frustrating.

Yes I have Chronic Lyme as well. I just got out of the hospital after a 9 day admission for crisis two days ago. I'm pretty miserable right now.