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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | ||
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Junior Member
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I have had alot of blood work since being off of Imuran which was in May. All liver function tests are normal. My gastrointestinal doctor has been checking up on it as well as my neurologist. I as well get the basic blood panel test before each iv infusion as well. All is well except red blood cells are a little low. Cholesterol is good. I was only on cellcept for 3 days and was in September. I keep thinking this is my thyroid doing all this. I feel a little better with the levothyroxine with some things but the heaviness in my whole body is still there. I had taken this medication once before and stopped it because it made me jittery but as bad as i was feeling these last few months i was willing to try anything again. Im afraid though because my tsh and t3 all come out very normal but i was having the same exact symptoms i had before i got diagnosed with the hashimotos thyroiditis. What if it isn't thyroid, and im taking this medication? The doctors as well point alot of my aches, pains and issues to prednisone. Ive been on it since i was 17 and i am 36 now. I just dont know what to do anymore. I always have someone go with me to all my dr appts too. I am never alone in that respect.
Thanks for taking the time to read and respond to this.. im really trying not to give up hope but its hard when you feel like no one wants to help or listen for that matter. |
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#2 | ||
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Senior Member
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If your thyroid is not really functioning too slowly, and you're taking synthroid, then you'll go hyperthyroid, and that will show up on the blood tests. Typical symptoms of being slightly hyperthyroid are (like you say) jitteriness, insomnia, and your heart beating faster than usual.
You will want to be tested to make sure you're not hyperthyroid, because they tell me that being hyperthyroid makes MG worse (though that may only be the case when you're hyperthyroid because of an autoimmune attack--I don't know). Also, being hyperthyroid over a long period of time will deplete your calcium and weaken your bones. Abby |
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