FAQ/Help |
Calendar |
Search |
Today's Posts |
![]() |
|
Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
Reply |
|
Thread Tools | Display Modes |
![]() |
#21 | |||
|
||||
Junior Member
|
Thanks, everyone.
![]() Alice, your post was especially moving for me. You and Annie both have such a positive impact on the group with your medical knowledge, intimate understanding of MG & enthusiasm for helping the rest of us better understand & manage MG. We're so fortunate to have you on the boards. I want to clone you.... ![]() |
|||
![]() |
![]() |
![]() |
#22 | ||
|
|||
Member
|
That is amazing news...!!!
Please be sure you know your numbers on the breathing tests. When I went to the ER earlier this month, my FVC was just under 1. My NIF was 28. I just want you to know that getting 5 days in a row of IVIG can often lead to aseptic meningitis. I just got over that, too. If it happens, a dose of IV Decadron can stop it in its tracks. You want to make sure you get some IV Solumedrol before the infusions, as well as Benadryl and Tylenol. I would take 800 mg of Ibuprophen (my neuro says it is much better than Tylenol) round the clock throughout and at least for 48 hours after the IVIG. Hydrate a lot, and hopefully you'll be okay. |
||
![]() |
![]() |
Reply |
Thread Tools | |
Display Modes | |
|
|