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Old 02-11-2013, 09:25 PM #21
bny806 bny806 is offline
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I never thought about that until when I read this thread.. I mean i was ILL - green, and soooooo nauseated and just felt AWFUL.. body ached.. I just thought that was a normal reaction to vancomycin.. as I said earlier, I've had many many tick bites, as I grew up outside and spent most of my 20's outside in new england hiking! What were your lyme symptoms initially? Did you test positive on the standard western blot?? I know they always teach dr's treat primary lime so it doesnt' turn into chronic, which is the "great imitator".. but they don't really teach them HOW to treat it..
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Old 02-11-2013, 09:41 PM #22
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Body aches are classic herxing. There are so many symptoms of Lyme Disease, it's ridiculous...but basically pain that moves around, fatigue, brain fog, GI distress, those are some of the top ones. Once it becomes chronic people struggle a lot with headaches and neuro issues, balance problems, vision disturbances, sensitivity to light and sounds, back pain, neuropathy, the list goes on and on.... check out www.lymefriends.org, www.ilads.org, whatislyme.com. Your best bet is to go to a lyme literate doctor who understands and treats chronic lyme. A Western Blot may pick up some bands but it is not reliable and a regular doctor generally won't read it correctly. You can get a list of doctors at www.lymenet.org at Flash Discussions.
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Old 06-14-2014, 10:04 PM #23
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I am so happy to have found this thread. I live in a Lyme hot spot in MASS and have had Lyme at least 7 or more times in 38 years that I've lived here. In the beginning we didn't know what it was up until the eighties, and then we got it treated, at first with 2 weeks of doxy and more recently like last summer I took it for 6 weeks. I'd been so busy all summer, I mean really stressed so busy that I couldn't take time to think about why I was having such a hard time walking up and down my hill between my house and my studio. Finally in August my son said to me Mom, maybe you have Lyme. My test was pos and I took 6 weeks of doxy, but I never felt strong after and looking back I'm thinking I was having a bit of trouble doing stairs, but I'm a pretty heavy woman and in my mid sixties so I thought well I'm fat and getting old, but I've lived a very active and physical life and I was noticing it was weird that repeated trips up and down the hill were taking me "out"... I'd lay down and rest and then after a good rest I'd be fine. Long story short... I was in a foreign counrty for a few months and had time to do research on Lyme. I was thinking I had chronic Lyme but the symptoms don't really match so well. I never have headaches and I feel pretty good, it's just that I get worn our doing stairs and things like climbing hills and I feel fine after rest. Last Feb I started feeling a sensation between my shoulders like blind pimple. Around April it began to feel it spreading more a bit but it would be there some days, like if it was going to rain , but then gone. Later it seemed to be there most every day. I somehow got off track doing my constant research and stumbled on MG and I was flabbergasted when I realized that "this" was what I have. My last eye appt had some tests with flashing lights that I didn't do so well on and my doctor asked me to come back and see her when I got back. When i read online for several hours sometimes everything gets blurry. So I went to my primary Doc and told her what I was thinking and she sent me for the Acetylcholine test and I'm waiting for the result. I know it can be neg and I can still have MG. BUT BUT , now i know that what I suspected could still be true or that there is some kind of connection with Lyme and MG... I'm not crazy on top of it all. I think even if I am MG pos , I'm going to get tested and find out if I have co infections etc... because that gives me hope to read some of what I've read on this thread. Tracy, if you read this please let me know how your doing . Thanks for reading me guys... I am so happy to have read you.
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Old 06-30-2014, 11:01 PM #24
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I have had Lyme many times in my life. When I first got it in the late 70's we didn't even know what it was, so we didn't treat at that time. I believe I have Chronic Lyme because although I have been treated for it with Doxycyline for 2,4, or 6 weeks depending on the year I got concurrent infections, I now know that that was not enough to kill the cysts and late stage Lyme. I began to develop symptoms of generalized MG about 18 months or more ago. I am older so I thought.. I was just getting old. I decided to research Lyme and discovered MG during my very lengthy research. I recognized the leg weakness that abates after rest. The difficulty climbing stairs or hills but no problem on flat ground. I have had some blurry vision but I wouldn't call it double vision. My mid back muscles started acting weird last winter and for a while it seemed to come and go but now it's almost constantly there and seldom away. I'm wondering how you have done with the Lyme and if you have managed to minimize or eradicate it, and if so has it effected your MG? I am exploring nutrition ways to address MG and just last night I watched and excellent vid by Dr. Deitrich Klinghardt on you tube about Lyme. He is one of the foremost experts on Lyme in the Alternative movement in the entire world.
I hope your making progress!
Best ,
beamer






Quote:
Originally Posted by Tracy9 View Post
Many of the symptoms are similar. I bring it up because I have both diseases and I can't help myself, because I see people posting without a definitive diagnosis that really fit the profile of Chronic Lyme Disease. Also I see people posting symptoms are that very fitting for Chronic Lyme, maybe more so than MG. It is called "The Great Imitator" and is a huge epidemic. It is hard to diagnose, makes you very sick, and has a ton of symptoms.

Also, when you have a bacterial infection for a really long time, you can develop an autoimmune disease. For myself and a surprising number of people I've met in other MG groups, our MG started with years of Chronic Lyme disease. If the Lyme goes undetected and untreated, the MG will never get better. My doctor is certain Chronic Lyme was the cause of my MG. I started to feel better when I went on long term IV antibiotics. I've been on them daily for 14 months.
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