Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.

 
 
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Old 02-12-2013, 10:59 PM #23
bny806 bny806 is offline
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Join Date: Nov 2011
Posts: 576
10 yr Member
bny806 bny806 is offline
Member
 
Join Date: Nov 2011
Posts: 576
10 yr Member
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You have truly helped me!!! I wish that I had a neuro that I felt more comfortable with... I will mention it again.. the fact that they are mentioning seronegative MG (after a year of being with them).. at least they are starting to think outside the box a little.. and again.. at least they gave me IVIG in the first place.. I thought I was going to drop dead at any moment before I was hospitalized.. it was awful.. I'll never forget the day I could hold a crayon with my daughter and color with her again! I am doing well, but sure would like to have a diagnosis so I can plan my future a little better and maybe get medicine that could help me more..

Again. ... THANK YOU!
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