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How many here have Lems?

 
 
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Old 02-12-2013, 11:17 PM #25
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Originally Posted by seishin View Post
Limpy, if I send you my complete list of symptoms, would you be willing to take a look at it and tell me if any of the symptoms seem to be unique or more common to LEMS vs MG? The doctor said I got stronger on the muscle fatigability test, and I respond to both Mestinon and Tensilon but I tested negative on all antibody tests and even the SFEMG so he wants to wean me off Mestinon....
Sure, I would be more than happy to try to help. Mestinon helps me, but does nothing for the eyes or the swallowing. The only thing that has helped that is the plasmapheresis.
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