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Old 02-24-2013, 03:08 PM #7
Tracy9 Tracy9 is offline
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Join Date: Dec 2010
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Tracy9 Tracy9 is offline
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Join Date: Dec 2010
Posts: 166
10 yr Member
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Southern Bell, that is why I am on IVIG and not Prednisone nor immunosuppressants, though I know they are a lifesaver for many. I often wonder if I'd have better quality of life being on both, but I am so afraid of the side effects I just live the way I am (unless it gets to a point where I have no choice due to breathing issues or something really bad.) IVIG keeps me going and though it is a pain and there are some side effects, I can handle them. I also have the Chronic Lyme and coinfections so any immunosuppressant could be pretty deadly for me as my immune system then could no longer keep the infections in check.
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