Originally Posted by Southern Bell

I too have experienced double vision which happened right after my diagnosis in 2009. My eyes would lock and I couldn't look side to side. I tried to use an eye patch (moving it from eye to eye) and my neoro prescribed two rounds of IVIG to no avail. I was so sick at my stomach that I couldn't eat.

I eventually ended up in the hospital where I was given prednisone and in a matter of three or four days my eyes were acting properly. Well after four years of taking prednisone (and the dosage being reduced slowly) I now have osteoporosis and a fractured spine.

Good luck finding a solution that does not have the horrible side effects that I have experienced.

Southern Bell

Originally Posted by tk3891

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I was on prednisone since april 12 and by October I had cataracts and had to have them removed Im 29 still trying to get off of the prednisone having horrible side effects way to fast

Originally Posted by Southern Bell

Tracy I also have another rare autoimmune illness and have tried 5 or 6 rounds of IVIG (at this point I can't remember) and one round (12 sections) of plasmapharisis and neither did any benefit to correct any of my symptoms. I truly wish I didn't have to go the prednisone route because of the side effects but I had to do something to correct the double vision.

I have to take so many different drugs to help me function and I know all of them have side effects, but I don't know any other way. I know my immune system is very comprimised but I have learned that one thing that helps has severe effects on my body. It's a no win situation. I'm glad you have found a good solution to help you. I also hope backwardpawn can do the same.

Southern Bell