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Myasthenia gravis fainting syncope

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Old 02-25-2013, 09:42 AM #11
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I guess I miscommunicated. I have problems with high blood pressure.
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Old 02-25-2013, 01:31 PM #12
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sorry maybe I misread what you were saying.

Mestinon didnt prevent me from fainting it reduced the number of times it happened. It isnt a cure all and sometimes needs to be used in conjunction with Midodrine (another medication I cant tolerate).

The best treatment I have found so far (and Im still fainting and have POTS) is Salt Tablets, Fluid loading (sports drinks are best for this) and a progesterone only contraceptive pill.

I am reaching the end of all the medicines I can try to reduce my syncope or pre-syncope.

Rach
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Postural Orthostatic Tachycardia Syndrome,Post Prandial Hypotension, Orthostatic Intolerance, Arrythmia, unstable blood pressure, severe autonomic nervous system dysfunction ,Ehlers Danlos Syndrome Type 3,Gastroparesis,IBS,Hidradenitis supprativa
And Myasthenia is still a possible diagnosis depending on which Dr I see.

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Old 02-25-2013, 10:57 PM #13
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dar78999, There are so many things that can cause fainting, such as being dehydrated! Do you have any known heart condition? Perhaps being evaluated for syncope is a good idea. Don't assume it's from a drug. A high or low BP can cause fainting too.

I faint when I experience extreme pain. I've never fainted due to Mestinon.

Rach, I think Celeste has high blood pressure. Right? Celeste has a very wry sense of humor. Oh, you guys are quick! You snuck in there before I could post. I'm glad you clarified that, Celeste.

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Old 02-26-2013, 06:43 AM #14
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Thanks Annie.

Sorry Celeste I am not on here enough to have got to know everyones personalities! I know that I can come across as quite direct so I apologise if any offence was caused!

Dar - there are so many causes behind a faint it would be wrong to blame it on a medication before having a full evaluation such as a Tilt Table Test or blood tests to check you dont have something like aneamia (spl?). There are also many medical conditions that can cause you to faint. I have Ehlers Danlos Syndrome. Which causes the blood to pool in my legs on standing or even sitting with my feet touching the floor. I have to sit with my legs at the same level as my hips or I will faint sitting down - hows that for a talent lol! Thats why no medication - even mestinon is ever going to cure my fainting as it cant change the Ehlers Danlos syndrome!

Even eating a carb heavy meal can provoke a faint in some people.

I hope you get to the bottom of your faints but I do feel that mestinon probably isnt the culprit and something else is going on such as problems with you autonomic nervous system due to MG.

Rach
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Diagnosed with:
Postural Orthostatic Tachycardia Syndrome,Post Prandial Hypotension, Orthostatic Intolerance, Arrythmia, unstable blood pressure, severe autonomic nervous system dysfunction ,Ehlers Danlos Syndrome Type 3,Gastroparesis,IBS,Hidradenitis supprativa
And Myasthenia is still a possible diagnosis depending on which Dr I see.

My blog address is
.

.


Lord, grant me the serenity to acceptThe things I cannot change,The courage to change The things I can,
And the wisdom to hideThe bodies of Doctors I shot
When they said,"You're perfectly healthy,
It's All In Your Head."
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Old 02-26-2013, 10:34 AM #15
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Quote:
Originally Posted by rach73 View Post
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Sorry Celeste I am not on here enough to have got to know everyones personalities! I know that I can come across as quite direct so I apologise if any offence was caused!
Rach
No offense taken. I hope that nobody gets offended by my off the wall sense of humor. Just for the record, I love you guys.
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Old 02-27-2013, 01:39 PM #16
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Originally Posted by dar78999 View Post
Hi All,

I'm writing this post about myasthenia gravis, mestinon (pyridostigmine bromide), and fainting or syncope. I'm not looking for an answer on this, I just want to put the information out in cyberspace in case anybody is looking for it. Since I've got MG I might as well share what I've learnt about it, so this is one more entry. I am a medical practitioner.

I'm a 37 year old male with myasthenia gravis, which unfortunately I've had since I was 18. On the bright side, I'm doing well, hardly taking any Mestinon in the last couple of years. Just some mild ongoing facial weakness. I currently take Azathioprine.

There have been countless surprising things that have happened in my time with MG, some of which I think are unrecognised side effects of Mestinon.

When I was a junior doctor (aged about 24 or 25) I had to spend some time in operating theatres, and I found that I would frequently feel faint and have to go outside to sit down. I'm not afraid of blood, and prior to spending time in theatre this had never ever happened before. I seemed to be able to prevent it somewhat by eating and drinking something before going in there. Obviously I now work nowhere near operating theatres.

I wonder (I'm not sure) if this is a side effect of Mestinon. Given mestinon causes side effects through the parasympathetic (autonomic) nervous system, I think it's possible that it could cause faintness, particularly when it's combined with standing still and wearing gloves, gown, mask etc.

So just in case there are any other doctors out there with MG who are finding that they faint in operating theatres, this may be why.

I suppose some atropine would help.

Some of the other posts I've put on the internet regarding MG or mestinon include:
- Myasthenia gravis and swimming (warning)
- myasthenia gravis, mestinon, and teeth / tooth enamel


Cheers,
D
hi i have never replied to anyone before, so if i'm not doing this right let me know. i'm 53 yrs old and have problems my whole life. these are the following problems i've had: myasthenia gravis, pots, supraventricular tachycardia, artial fibrillation, rupured discs, ankylosing spondylitis, sjogren's syndrome, i sweat so bad i'm emmbarassed, stomach problems, other things. going to cleveland clinic b/c twitching, leg cramps, toes do not move need help. 22 years like this.
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