Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.

Reply
 
Thread Tools Display Modes
Old 02-26-2013, 06:43 AM #1
rach73 rach73 is offline
Member
 
Join Date: Apr 2009
Location: Devon, United Kingdom
Posts: 531
15 yr Member
rach73 rach73 is offline
Member
 
Join Date: Apr 2009
Location: Devon, United Kingdom
Posts: 531
15 yr Member
Default

Thanks Annie.

Sorry Celeste I am not on here enough to have got to know everyones personalities! I know that I can come across as quite direct so I apologise if any offence was caused!

Dar - there are so many causes behind a faint it would be wrong to blame it on a medication before having a full evaluation such as a Tilt Table Test or blood tests to check you dont have something like aneamia (spl?). There are also many medical conditions that can cause you to faint. I have Ehlers Danlos Syndrome. Which causes the blood to pool in my legs on standing or even sitting with my feet touching the floor. I have to sit with my legs at the same level as my hips or I will faint sitting down - hows that for a talent lol! Thats why no medication - even mestinon is ever going to cure my fainting as it cant change the Ehlers Danlos syndrome!

Even eating a carb heavy meal can provoke a faint in some people.

I hope you get to the bottom of your faints but I do feel that mestinon probably isnt the culprit and something else is going on such as problems with you autonomic nervous system due to MG.

Rach
__________________
Diagnosed with:
Postural Orthostatic Tachycardia Syndrome,Post Prandial Hypotension, Orthostatic Intolerance, Arrythmia, unstable blood pressure, severe autonomic nervous system dysfunction ,Ehlers Danlos Syndrome Type 3,Gastroparesis,IBS,Hidradenitis supprativa
And Myasthenia is still a possible diagnosis depending on which Dr I see.

My blog address is
.

.


Lord, grant me the serenity to acceptThe things I cannot change,The courage to change The things I can,
And the wisdom to hideThe bodies of Doctors I shot
When they said,"You're perfectly healthy,
It's All In Your Head."
rach73 is offline   Reply With QuoteReply With Quote
Old 02-26-2013, 10:34 AM #2
southblues's Avatar
southblues southblues is offline
Member
 
Join Date: Jul 2012
Location: Georgia USA
Posts: 818
10 yr Member
southblues southblues is offline
Member
southblues's Avatar
 
Join Date: Jul 2012
Location: Georgia USA
Posts: 818
10 yr Member
Default

Quote:
Originally Posted by rach73 View Post
T
Sorry Celeste I am not on here enough to have got to know everyones personalities! I know that I can come across as quite direct so I apologise if any offence was caused!
Rach
No offense taken. I hope that nobody gets offended by my off the wall sense of humor. Just for the record, I love you guys.
__________________
Celeste
southblues is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
rach73 (02-26-2013)
Reply

Tags
myasthenia syncope faint


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Myasthenia Gravis bobcatsrule Myasthenia Gravis 8 07-07-2013 09:09 PM
Myasthenia Gravis for 27 yrs dkmiller New Member Introductions 2 08-24-2012 01:20 AM
Myasthenia Gravis Kathie Glenn Myasthenia Gravis 13 07-09-2010 02:25 PM
myasthenia gravis johnc666 New Member Introductions 3 04-17-2010 07:28 PM
Myasthenia Gravis bobcatsrule New Member Introductions 5 01-07-2008 10:48 AM


All times are GMT -5. The time now is 09:12 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.