Well I am taking pyridostigmine while constantly worrying about blood pressure. That is not good.

Well the Mestinon certainly wasn't stopping me from feeling faint.

Hi Celeste,

I am sorry that you have low blood pressure, the side effects of which can be truly debilitating alongside those of MG.

Is it worth you having the low blood pressure investigated? Keeping a diary at home to show when your BP is low is a great place to start as it can help you identify triggers - heat, exhaustion, dehydration or eating a carb heavy meal can all drop your bp.

It maybe worth finding somewhere tha can do a Tilt Table test to see if you have postural hypotension. If you have a look on the Dinet website that I posted the link for they have a list of Drs in the USA and all over the world that diagnose and treat patients with autonomic nervous system problems.

I hope you get some answers and find some way of raising your bp so that you feel better.

Rach

I guess I miscommunicated. I have problems with high blood pressure.

sorry maybe I misread what you were saying.

Mestinon didnt prevent me from fainting it reduced the number of times it happened. It isnt a cure all and sometimes needs to be used in conjunction with Midodrine (another medication I cant tolerate).

The best treatment I have found so far (and Im still fainting and have POTS) is Salt Tablets, Fluid loading (sports drinks are best for this) and a progesterone only contraceptive pill.

I am reaching the end of all the medicines I can try to reduce my syncope or pre-syncope.

Rach

dar78999, There are so many things that can cause fainting, such as being dehydrated! Do you have any known heart condition? Perhaps being evaluated for syncope is a good idea. Don't assume it's from a drug. A high or low BP can cause fainting too.

I faint when I experience extreme pain. I've never fainted due to Mestinon.

Rach, I think Celeste has high blood pressure. Right? Celeste has a very wry sense of humor. Oh, you guys are quick! You snuck in there before I could post. I'm glad you clarified that, Celeste.

Annie

Thanks Annie.

Sorry Celeste I am not on here enough to have got to know everyones personalities! I know that I can come across as quite direct so I apologise if any offence was caused!

Dar - there are so many causes behind a faint it would be wrong to blame it on a medication before having a full evaluation such as a Tilt Table Test or blood tests to check you dont have something like aneamia (spl?). There are also many medical conditions that can cause you to faint. I have Ehlers Danlos Syndrome. Which causes the blood to pool in my legs on standing or even sitting with my feet touching the floor. I have to sit with my legs at the same level as my hips or I will faint sitting down - hows that for a talent lol! Thats why no medication - even mestinon is ever going to cure my fainting as it cant change the Ehlers Danlos syndrome!

Even eating a carb heavy meal can provoke a faint in some people.

I hope you get to the bottom of your faints but I do feel that mestinon probably isnt the culprit and something else is going on such as problems with you autonomic nervous system due to MG.

Rach

No offense taken. I hope that nobody gets offended by my off the wall sense of humor. Just for the record, I love you guys.