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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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Thanks Annie.
Sorry Celeste I am not on here enough to have got to know everyones personalities! I know that I can come across as quite direct so I apologise if any offence was caused! Dar - there are so many causes behind a faint it would be wrong to blame it on a medication before having a full evaluation such as a Tilt Table Test or blood tests to check you dont have something like aneamia (spl?). There are also many medical conditions that can cause you to faint. I have Ehlers Danlos Syndrome. Which causes the blood to pool in my legs on standing or even sitting with my feet touching the floor. I have to sit with my legs at the same level as my hips or I will faint sitting down - hows that for a talent lol! Thats why no medication - even mestinon is ever going to cure my fainting as it cant change the Ehlers Danlos syndrome! Even eating a carb heavy meal can provoke a faint in some people. I hope you get to the bottom of your faints but I do feel that mestinon probably isnt the culprit and something else is going on such as problems with you autonomic nervous system due to MG. Rach
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Diagnosed with: Postural Orthostatic Tachycardia Syndrome,Post Prandial Hypotension, Orthostatic Intolerance, Arrythmia, unstable blood pressure, severe autonomic nervous system dysfunction ,Ehlers Danlos Syndrome Type 3,Gastroparesis,IBS,Hidradenitis supprativa And Myasthenia is still a possible diagnosis depending on which Dr I see. My blog address is . . Lord, grant me the serenity to acceptThe things I cannot change,The courage to change The things I can, And the wisdom to hideThe bodies of Doctors I shot When they said,"You're perfectly healthy, It's All In Your Head." |
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