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Old 02-26-2013, 11:14 PM #1
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tk3891 tk3891 is offline
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Join Date: Feb 2013
Location: Orlando, Florida
Posts: 9
10 yr Member
tk3891 tk3891 is offline
Junior Member
tk3891's Avatar
 
Join Date: Feb 2013
Location: Orlando, Florida
Posts: 9
10 yr Member
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Hi I was diagnosed with MG February 2012 after finding out I was pregnant a week before. I spent most of my pregnancy in the hospital one time for 21 days not being able to eat or even swallow my own salavia. My daughter was born 9 weeks early because of so many complications. In October I was in the hospital again because I couldn't see.
Later to find out that I had cataracts in both eyes I am 29 years old. They say it was from the prednisone my doctor has been trying to take me off of it but every time they do I end up not being able to eat am very weak have slurred speech. There are many times I can not even take care of my daughter and my family is here to help but just want my life back. I had plasmapherisis done and it helped for a bit.

I recently had IVIG done and that seemed to do nothing. I want to know if there is anything that I should ask my doctor to put me on that might help me better. Right now I take Mestonin 60 mg 4 times a day and I am back up to 40 mg of prednisone a day. Was down to 10 mg but all my symptoms started coming back. I am just so frustrated and want to be able to have one week without having issues just looking for any advice.
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