I am a 55 year old male, was diagnosed with MG in 2008, new to the site and have questions.
I have IVIG every 5 weeks, taking prednisone, Cellcept and mestinon
• I have begun falling recently. I will be walking, suddenly aware that I will fall and then fall.
• Body temperature issues I cannot regulate my body temperature. I am either hot and sweating or cold.
• Restlessness/ cannot sleep I am tired, until I go to bed and then cannot sleep (heart pounding and brain racing until I am completely exhausted. Sometimes I am awake all night
Anyone out there have similar experiences?
Thanks

Please get a blood test to check your thyroid. It is common for people with MG to come down with Graves disease, which is another autoimmune disease (your immune system attacks your thyroid gland and sends it into hyperdrive). Restlessness, insomnia, heart pounding, sweating, and especially racing thoughts are typical symptoms.

Stick your tongue out and look in the mirror. Is it trembling? That's another symptom. If you hold your hands out, palms down, you might also notice a fine tremor.

A flare of Graves is said to make MG worse. It can also make muscles weak on its own. That could account for the falling down. I'm not diagnosing you--it could be something else--but I'm suggesting that you have your thyroid levels checked.

Abby